Report

Science of mitochondrial donation and related matters

27 June 2018

© Commonwealth of Australia 2018
ISBN 978-1-76010-783-3

View the report as a single document - (PDF 1685KB)


View the report as separate downloadable parts:

MEMBERSHIP OF THE COMMITTEE (PDF 25KB)
ABBREVIATIONS (PDF 13KB)
LIST OF RECOMMENDATIONS (PDF 51KB)
Chapter 1 - Introduction (PDF 72KB)

What is mitochondrial disease?
Mitochondrial donation
Regulation of mitochondrial donation and related research
Overseas status of mitochondrial donation
Report structure
Conduct of the inquiry

Chapter 2 - Living with mitochondrial disease (PDF 185KB)

What is mitochondrial disease?
Living with mitochondrial disease
Costs of mitochondrial disease
Options for having children
Committee view

Chapter 3 - Science of mitochondrial donation (PDF 1080KB)

Mitochondrial donation techniques
Potential risks
Is an additional scientific review required?
Australian clinical capacity
Committee view

Chapter 4 - Ethics of mitochondrial donation (PDF 149KB)

Moral issues
Medical and health ethics
Scientific ethical considerations
Concluding committee view

Chapter 5 - Regulation (PDF 144KB)

Introduction
UK path to regulation
Australian legislative prohibitions on germline modification
Australian approach to introduction
Australian regulatory regime
Accessing overseas clinics
State law
Public consultation
Recommendations

APPENDIX 1 - Submissions and additional information received by the Committee (PDF 18KB)
APPENDIX 2 - Public hearings (PDF 10KB)

Committee Secretariat contact:

Committee Secretary
Senate Standing Committees on Community Affairs
PO Box 6100
Parliament House
Canberra ACT 2600

Phone: +61 2 6277 3515
Fax: +61 2 6277 5829
community.affairs.sen@aph.gov.au

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