APPENDIX 1

Submissions and additional information received by the Committee

Submissions

1 Wellcome Trust (plus three attachments)
2 Human Genetics Society of Australasia  
3 United Mitochondrial Disease Foundation 
4 National Health and Medical Research Council 
5 Name Withheld 
6 Name Withheld 
7 Dr John Duley 
8 Name Withheld 
9 Name Withheld 
10 Confidential
11 Name Withheld 
12 Professor John Christodoulou 
13 Confidential
14 Name Withheld 
15 Name Withheld 
16 Confidential
17 Professor Aleksandra Filipovska 
18 Name Withheld 
19 Monash Biomedicine Discovery Institute, Monash University 
20 Associate Professor Catherine Mills, Associate Professor Karinne Ludlow, Professor Robert Sparrow, Dr Narelle Warren 
21 Scientists In Reproductive Technology 
22 Confidential
23 Murdoch Children's Research Institute and Victorian Clinical Genetics Services 
24 Professor Carolyn Sue 
25 Associate Professor Damian Dowling (plus an attachment)
26 Australian Mitochondrial Disease Foundation (plus two attachments and a supplementary submission)
27 Fertility Society of Australia 
28 Australian Catholic Bishops Conference 
29 Dr Ainsley Newson 
30 Plunkett Centre for Ethics 
31 Professor Jus St. John 
32 Name Withheld 
33 Name Withheld 
34 Biomedical Ethics Research Group, Murdoch Children's Research Institute 
35 Australian Academy of Science 
36 Name Withheld 
37 Dr Nigel Turner 
38 Name Withheld 
39 Name Withheld 
40 Mr Ash Howlett and Dr Steve Mercer 
41 Ms Mary Price 
42 NSW Stem Cell Network 
43 Nuffield Council on Bioethics 
44 Lily Foundation 
45 Wellcome Centre for Mitochondrial Research 
46 Dr Peter McCullagh 
47 Dr Ian Trounce 
48 Progress Educational Trust (plus two attachments)
49 Dr Mary Herbert 
50 Confidential
51 Australian Christian Lobby 
52 Dr Shanti Balasubramaniam 
53 Human Fertilisation and Embryology Authority (plus an attachment)
54 Dr Cathy Herbrand 
55 Professor Sheryl de Lacey 
56 Social Issues Committee, Anglican Church Diocese of Sydney 
57 Distinguished Professor Jenni Millbank, Distinguished Professor Isabel Karpin and Professor Anita Stuhmcke 
58 Professor Robin Lovell-Badge (plus an attachment)
59 Professors David Thorburn, John Christodoulou, Carolyn Sue, John Carroll, Mike Ryan and Aleksandra Filipovska (plus an attachment)
60 Catholic Health Australia

Additional Information

1 Mitochondrial Disease: The Need for Mitochondrial Donation, from Australian Mitochondrial Disease Foundation, received 17 April 2018
2 Q&A: Mitochondrial donation, Wellcome Trust, from Australian Mitochondrial Disease Foundation, received 17 April 2018
3 Human Fertilisation and Embryology (Mitochondrial Donation) Regulations 2015, from Australian Mitochondrial Disease Foundation, received 17 April 2018
4 House of Commons Mitochondrial Donation briefing, 29 January 2015, from Australian Mitochondrial Disease Foundation, received 17 April 2018
5 Third scientific review of the safety and efficacy of methods to avoid mitochondrial disease through assisted conception: 2014 update, June 2014, from UK Human Fertilisation and Embryology Authority, received 30 May 2018
6 Review of the safety and efficacy of polar body transfer to avoid mitochondrial disease, October 2014, from UK Human Fertilisation and Embryology Authority, received 30 May 2018
7 Scientific review of the safety and efficacy of methods to avoid mitochondrial disease through assisted conception: 2016 update, November 2016, from UK Human Fertilisation and Embryology Authority, received 30 May 2018

Answers to Questions on Notice

1 Answers to Questions taken on Notice during 17 May public hearing, received from Associate Professor Damian Dowling, 30 May 2018
2 Answers to Questions taken on Notice during 17 May public hearing, received from National Health and Medical Research Council, 31 May 2018

Tabled Documents

1 Mitochondrial donation / mitochondrial replacement / nuclear transfer, tabled by Professor Jus St. John, at Sydney public hearing, 17 May 2018

Correspondence

1 Correspondence clarifying evidence given at Sydney public hearing on 17 May 2018, received from Dr Ainsley Newson, 6 June 2018

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