LIST OF RECOMMENDATIONS
committee recommends that governments and other organisations use the term
'intersex' and not use the term 'disorders of sexual development'.
committee recommends that health professionals and health organisations review
their use of the term 'disorders of sexual development', seeking to confine it
to appropriate clinical contexts, and should use the terms 'intersex' or
'differences of sexual development' where it is intended to encompass genetic
or phenotypic variations that do not necessarily require medical intervention
in order to prevent harm to physical health.
committee recommends that all medical treatment of intersex people take place
under guidelines that ensure treatment is managed by multidisciplinary teams
within a human rights framework. The guidelines should favour deferral of
normalising treatment until the person can give fully informed consent, and
seek to minimise surgical intervention on infants undertaken for primarily
committee recommends that the Commonwealth government provide funding to ensure
that multidisciplinary teams are established for intersex medical care that
have dedicated coordination, record-keeping and research support capacity, and
comprehensive membership from the various medical and non-medical specialisms.
All intersex people should have access to a multidisciplinary team.
light of the complex and contentious nature of the medical treatment of
intersex people who are unable to make decisions for their own treatment, the
committee recommends that oversight of these decisions is required.
5.30 The committee recommends that all
proposed intersex medical interventions for children and adults without the
capacity to consent require authorisation from a civil and administrative
tribunal or the Family Court.
5.31 The committee recommends that
the Standing Committee on Law and Justice consider the most expedient way to
give all civil and administrative tribunals in all States and Territories
concurrent jurisdiction with the Family Court to determine authorisation for
intersex medical interventions proposed for a child.
5.32 The committee recommends that civil and administrative tribunals be
adequately funded and resourced to consider every intersex medical intervention
proposed for a child.
committee recommends that the special medical procedures advisory committee
draft guidelines for the treatment of common intersex conditions based on
medical management, ethical, human rights and legal principles. These
guidelines should be reviewed on an annual basis.
committee recommends that complex intersex medical interventions be referred to
the special medical procedures advisory committee for consideration and report
to whichever body is considering the case.
5.70 The committee recommends that the provision of information
about intersex support groups to both parents/families and the patient be a
mandatory part of the health care management of intersex cases.
5.72 The committee recommends that intersex support groups be core funded
to provide support and information to patients, parents, families and health
professionals in all intersex cases.
committee recommends that the Commonwealth Government support the establishment
of an intersex patient registry and directly fund research that includes a
long-term prospective study of clinical outcomes for intersex patients.
committee recommends that the Commonwealth government investigate the appropriate
regulation of the use of dexamethasone for prenatal treatment of CAH.
committee recommends that, effective immediately, the administration of
dexamethasone for prenatal treatment of CAH only take place as part of research
projects that have ethics approval and patient follow-up protocols.
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