Footnotes

Chapter 1 - Introduction and conduct of inquiry

[1]        For example: People with Disabilities Australia, Committee Hansard, 30 November 2011, p. 55; Professor Christine Bigby, Committee Hansard, 29 November 2011, p. 21; Catholic Health Australia, Submission 35, Recommendation, p. 6.

[2]        International Review of Future Planning Options: http://www.fahcsia.gov.au/sa/carers/pubs/Documents/international_review/default.htm (viewed: 12 May 2011). PLAN is an organisation that is involved in assisting families caring for a person with a disability plan for the future: http://www.plan.ca/.

[3]        2009 Australian Bureau of Statistics, Survey of Disability, Ageing and Carers: Summary of Findings, 2010, p. 3.

[4]        2009 Australian Bureau of Statistics, Survey of Disability, Ageing and Carers: Summary of Findings, 2010, p. 3.

[5]        2009 Australian Bureau of Statistics, Survey of Disability, Ageing and Carers: Summary of Findings, 2010, p. 10.

[6]        Productivity Commission Draft Report, Disability Care and Support, Volume 1, p. 2.

[7]        Council of Australian Governments website, www.coag.gov.au/coag_meeting_outcomes/2008-11-29/docs/20081129_national_disability_agreement_factsheet.pdf (viewed: 29 January 2011).

[8]        Budget National Mental Health Reform 2011–12, http://budget.australia.gov.au/2011-12/content/download/ms_health.pdf , p. 5.

Chapter 2 - Challenges facing the disability sector

[1]        Productivity Commission, Draft Report, Disability Care and Support, Volume 1, p. 5.

[2]        FaHCSIA, Committee Hansard, 8 November 2010, p. 2.

[3]        For example: Mrs Joan Hughes, CEO, Carers Australia, suggested that 'we have a crisis driven system', Committee Hansard, 8 November 2010, p. 26; Ms Leah Hobson, Australian Federation of Disability Organisations, reiterated the system was 'crisis orientated', Committee Hansard, 29 November 2010, p. 6; while Family Advocacy argued 'accommodation support is crisis driven', Submission 2, p. 2.

[4]        Committee Hansard, 30 November 2010, p. 57.

[5]        Committee Hansard, 8 November 2010, p. 19. This was reiterated in the findings of the Productivity Commission which suggested: 'The high costs involved with crisis situations can impede funding for other support services. This is because when faced with budget constraints, systems have little choice but to give priority to families in crisis. This means that any growth in the number of crises can cause further rationing over time', Productivity Commission, Draft Report, Disability Care and Support, Volume 1, p. 6.

[6]        Committee Hansard, 29 November 2010, pp. 12–13.

[7]        Committee Hansard, 29 November 2010, p. 59.

[8]        Mrs Joan Hughes, Committee Hansard, 8 November 2010, p. 26.

[9]        Committee Hansard, 18 February 2011, p. 35.

[10]      Submission 43, p. 6.

[11]      Productivity Commission, Draft Report, Disability Care and Support, Volume 1, p. 6.

[12]      Council of Australian Governments, National Disability Agreement, Intergovernmental Agreement on Federal Financial Relations, 29 November 2008, section 26.

[13]      Ms Leah Hobson, Australian Federation of Disability Organisations, Committee Hansard, 29 November, 2010, p. 5.

[14]      Committee Hansard, 29 November 2010, p. 5.

[15]      See, for example, National Ethnic Disability Alliance, Committee Hansard, 29 November, 2010, p. 52; Vision Australia, Submission 84, p. 7; Ms Leah Hobson, Committee Hansard, 29 November, 2010, p. 2.

[16]      Committee Hansard, 8 November 2010, pp. 23–4.

[17]      Committee Hansard, 8 November 2010, p. 21.

[18]      Committee Hansard, 29 November 2010, pp. 25–6.

[19]      Committee Hansard, 29 November 2010, p. 29.

[20]      Committee Hansard, 18 February 2011, p. 49.

[21]      Committee Hansard, 18 February 2011, p. 26.

[22]      Committee Hansard, 29 November 2010, p. 49.

Chapter 3 - Legislative and policy frameworks

[1]        In some states, institutionalisation remained until much later. The Willow Court Centre in Tasmania, a residential institution for people with disabilities, was not closed until October 2000. The Tasmanian Parliament passed a tri-partite motion in October 2008 recognising that 'institutional care is no longer appropriate for people with disabilities' and requiring a Joint Standing Committee on Community Development investigation. Department of Health and Human Services (TAS), Directions Paper, Content and Structure of New Disability Services Legislation in Tasmania, November 2009, p. 5.

[2]        See for example, Dr Sev Ozdowski, Disability discrimination legislation in Australia from an international human rights perspective: History, achievements and prospects, 2002, http://www.hreoc.gov.au/disability_rights/speeches/2002/history02.htm (accessed 8 June 2011).

[3]        Disability Services Commission WA, A Policy Framework is Born, http://www.disability.wa.gov.au/aboutdisability/disabilityserviceshistory/policyframework.html (accessed 30 May 2011).

[4]        Helen Browlee, Employment and Income Security Support, Family Matters (28), April 1991, p. 14.

[5]        Dale Daniels, Parliamentary Library Social Security Payments for the Aged, People with Disabilities and Carers 1901 to 2010, 21 February 2011, p. 4.

[6]        Home and Community Care Act 1985, ss. 5(1), 7(1).

[7]        Dale Daniels, Parliamentary Library Social Security Payments for the Aged, People with Disabilities and Carers 1901 to 2010, 21 February 2011, pp 18–23.

[8]        United Nations Enable, History of United Nations and Persons with Disabilities - A human rights approach: the 1970s, http://www.un.org/disabilities/default.asp?id=130 (accessed 31 May 2011).

[9]        United Nations Enable, History of United Nations and Persons with Disabilities - A human rights approach: the 1970s, http://www.un.org/disabilities/default.asp?id=130 (accessed 31 May 2011).

[10]      United Nations General Assembly, Final report of the Ad Hoc Committee on a Comprehensive and Integral International Convention on the Protection and Promotion of the Rights and  Dignity of Persons with Disabilities, 6 December 2006, p. 8.

[11]      Committee Hansard, 30 November 2011, pp 55, 57.

[12]      Council of Australian Governments, National Disability Agreement, Intergovernmental Agreement on Federal Financial Relations, 29 November 2008, section 15.

[13]      Department of Human Services (VIC), The Disability Act 2006, Information Sheet 1,February 2011, http://www.dhs.vic.gov.au/__data/assets/pdf_file/0019/152308/disact_infosheet_1_disact06_0211.pdf (accessed 8 June 2011).

[14]      JacksonRyan Partners, Submission 15, p. 3.

[15]      The State of Queensland (Department of Communities) Rights of people with a disability, 2011, http://www.communities.qld.gov.au/disability/key-projects/disability-services-act-2006/rights-of-people-with-a-disability (accessed 31 May 2011).

[16]      Endeavour Foundation, Submission 14, p. 2.

[17]      Disability Services Act 1993 (NT), s. 3.

[18]      Community & Disability Services Ministers' Advisory Council, Community and Disability Services Ministers' Conference Communiqué, 23 July 2008, p. 1.

[19]      Community & Disability Services Ministers' Advisory Council, Community and Disability Services Ministers' Conference Communiqué, 23 July 2008, p. 1.

[20]      Mrs Lucy Crawford, Mai-Wel Ltd, Committee Hansard, 30 November 2010, pp 33–34.

[21]      Council of Australian Governments, National Disability Agreement, Intergovernmental Agreement on Federal Financial Relations, 29 November 2008, section 15.

[22]      Council of Australian Governments, National Disability Agreement, Intergovernmental Agreement on Federal Financial Relations, 29 November 2008, section 26.

[23]      Council of Australian Governments, National Disability Agreement Factsheet, 29 November 2008, http://www.coag.gov.au/coag_meeting_outcomes/2008-11-29/docs/20081129_national_disability_agreement_factsheet.pdf (accessed 7 June 2011).

[24]      Council of Australian Governments, National Disability Agreement, Intergovernmental Agreement on Federal Financial Relations, 29 November 2008, section 17.

[25]      However, the report identified that a lack of new data together with a lack of state and territory agreement on determining performance measures limited any assessment the report was able to make. Steering Committee for the Review of Government Service Provision, National Agreement Performance Information 2009–10: National Disability Agreement, Productivity Commission, Canberra, Table NDA 3.1.

[26]      Ms Leah Hobson, Australian Federation of Disability Organisations, Committee Hansard, 29 November 2010, p. 6.

[27]      FaHCSIA, National Disability Strategy, Background to the Strategy, http://www.fahcsia.gov.au/sa/disability/progserv/govtint/Pages/nds.aspx#4 (accessed 1 June 2011).

[28]      Council of Australian Governments, National Disability Strategy, 2011, p. 10.

[29]      Council of Australian Governments, National Disability Strategy, 2011, p. 19.

[30]      Council of Australian Governments, National Disability Strategy, 2011, p. 20.

[31]      Council of Australian Governments, National Disability Strategy, 2011, p. 51.

[32]      Explanatory Memorandum, Carers Recognition Bill 2010, p. 7.

[33]      Committee Hansard, 18 February 2011, p. 24.

[34]      Mrs Tracy Mackey, Department of Health, Committee Hansard, 18 February 2010, p. 53.

[35]      Department of Health, National Respite for Carers Program, http://www.health.gov.au/internet/main/publishing.nsf/Content/ageing-carers-nrcp.htm (accessed 30 June 2011).

[36]      Mrs Tracy Mackey, Committee Hansard, 18 February 2010, p. 53.

[37]      By contrast, the division of responsibility for disability and aged care services is the opposite: people with a disability aged 65 and under can access centralised services provided by the Ministry of Health whereas services for older people are obtained from local District Health Boards. The Allen Consulting Group, International Review of Future Planning Options, Final Report to the Department of Families, Housing, Community Services and Indigenous Affairs, January 2009, p. 87.

[38]      Australian Law Reform Commission, Aged Care Legislation for the Commonwealth, 2010, http://www.alrc.gov.au/inquiries/aged-care-legislation-commonwealth (accessed 6 June 2011).

[39]      Department of Health and Ageing, What does the Australian Government Pay? http://www.agedcareaustralia.gov.au/internet/agedcare/publishing.nsf/content/What+does+the+government+pay (accessed 6 June 2011).

[40]      Department of Health and Ageing, Fees and Charges for Residential Aged Care - An Overview, http://www.health.gov.au/internet/main/publishing.nsf/Content/38A97C5DDFEB223ACA25744000810E58/$File/9FeesChargesResidentialAgedCare.pdf (accessed 6 June 2011).

[41]      Department of Health and Ageing, Help with Aged Care Homes, September 2006, http://www.agedcareaustralia.gov.au/internet/agedcare/publishing.nsf/Content/cq-195,  (accessed 6 June 2011).

[42]      Department of Health and Ageing, What does the Australian Government Pay? http://www.agedcareaustralia.gov.au/internet/agedcare/publishing.nsf/content/What+does+the+government+pay (accessed 6 June 2011).

[43]      The Approval of Care Recipient Principles 1997 is a legislative instrument that details the approval of people as care recipients under section 2.3 of the Aged Care Act 1997.

[44]      Department of Health and Ageing, Aged Care Assessment and Approval Guidelines, 2006, http://www.health.gov.au/internet/publications/publishing.nsf/Content/CA25774C001857CACA25721A0002E29B/$File/03part1.pdf (accessed 6 June 2011).

[45]      Department of Health and Ageing, Aged Care Assessment and Approval Guidelines, 2006, http://www.health.gov.au/internet/publications/publishing.nsf/Content/CA25774C001857CACA25721A0002E29B/$File/03part1.pdf (accessed 6 June 2011).

[46]      Mrs Tracy Mackey, Committee Hansard, 18 February 2011, p. 46.

[47]      Mrs Jill O'Connor, Down Syndrome New South Wales, Committee Hansard, 30 November 2010, p. 7.

[48]      As well as meeting the age criteria, eligible persons must be: 'not able to work for 15 hours or more per week at or above the relevant minimum wage or be reskilled for such work for at least the next 2 years because of your illness, injury or disability; or be working under the Supported Wage System (SWS); or be permanently blind.' Centrelink, DSP Eligibility, http://www.centrelink.gov.au/internet/internet.nsf/payments/dsp_eligible.htm (accessed 6 June 2011).

[49]      Centrelink, Age Pension Eligibility, http://www.centrelink.gov.au/internet/internet.nsf/payments/age_pension.htm (accessed 6 June 2011).

[50]      Ms Leah Hobson, Australian Federation of Disability Organisations, Committee Hansard, 29 November 2010, p. 7.

[51]      Mrs Tracy Mackey, Committee Hansard, 18 February 2011, p. 41.

[52]      Department of Health and Ageing, Home and Community Care Overview, http://www.health.gov.au/internet/main/publishing.nsf/Content/hacc-index.htm (accessed 7 June 2011).

[53]      Steering Committee for the Review of Government Service Provision, Report on Government Services 2011, Productivity Commission, Canberra, F 22; Productivity Commission, Draft Report, Caring for Older Australians, January 2011, p. 11.

[54]      Western Australia was not a party to the agreement, and Victoria has not yet agreed to the changes to HACC. Council of Australian Governments, A National Health and Hospitals Network, 19-20 April 2010, http://www.coag.gov.au/coag_meeting_outcomes/2010-04-19/index.cfm#nathealth (accessed 7 June 2011).

[55]      Ms Rachel Balmanno, Department of Health and Ageing, Committee Hansard, 18 February 2011, pp. 55–56.

[56]      Community Care Consortium, COAG Reforms to the HACC Program, http://www.nswnassa.org.au/uploads/forms/2937_CCC_CoverLetter_HR%20(2).pdf (accessed 7 June 2011).

[57]      Ms Rachel Balmanno, Committee Hansard, 18 February 2011, p. 43.

[58]      See Senate Community Affairs Committee, Building trust: Supporting families through Disability Trusts, 16 October 2008.

[59]      Ms Sharon Rose, FaHCSIA, Committee Hansard, 8 November 2010, p. 12.

[60]      These changes are outlined on the FaHCSIA website: http://www.fahcsia.gov.au/sa/carers/progserv/pages/specialdisabilitytrusts.aspx (accessed 30 June 2011).

[61]      Ms Sharon Rose, FaHCSIA, Committee Hansard, 8 November 2010, p. 12.

[62]      FaHCSIA, Answer to Question on Notice 5 from public hearing 8 November 2010.

[63]      Mrs Lorriane Hitt, Planned Individual Networks, Committee Hansard, 18 February 2010, p. 85.

[64]      Mr Phillip Farrow, Bedford Group, Committee Hansard, 8 November 2010, p. 41.

[65]      FaHCSIA, Supported Accommodation Innovation Fund Fact Sheet, http://www.fahcsia.gov.au/sa/disability/progserv/providers/saif/Pages/saif_factsheet.aspx (accessed 30 June 2011).

[66]      Council of Australian Governments, National Disability Agreement, Intergovernmental Agreement on Federal Financial Relations, 29 November 2008, section 16.

[67]      Australian Institute of Health and Welfare, Disability Support Services 2008-09: Report on services provided under the Commonwealth State/Territory Disability Agreement and the National Disability Agreement, 19 January 2011, Disability series, Cat. no. DIS 58. Canberra, p. vii.

[68]      COAG Communique 29 November 2008, http://www.coag.gov.au/coag_meeting_outcomes/2008-11-29/index.cfm#disability  (accessed 7 June 2011).

[69]      COAG Communique 29 November 2008, http://www.coag.gov.au/coag_meeting_outcomes/2008-11-29/index.cfm#disability  (accessed 7 June 2011).

[70]      Australian Institute of Health and Welfare, Disability Support Services 2008–09: Report on services provided under the Commonwealth State/Territory Disability Agreement and the National Disability Agreement, 19 January 2011, Disability series, Cat. no. DIS 58. Canberra, p. 16.

[71]      NDA was formerly Commonwealth State Territory Disability Agreement (CSTDA).

[72]      Australian Institute of Health and Welfare, Disability Support Services 2008-09: Report on services provided under the Commonwealth State/Territory Disability Agreement and the National Disability Agreement, 19 January 2011, Disability series, Cat. no. DIS 58. Canberra, p. 45.

[73]      Productivity Commission, Draft Report, Disability Care and Support, Volume 1, February 2011, ss 2.14, 2.20.

[74]      Australian Government JobAccess, Guide to Legislation, http://jobaccess.gov.au/ServiceProviders/Help_available/Help_with_rights_and_responsibilities/Pages/Guide_to_legislation.aspx (accessed 8 June 2011).

[75]      Community Services Directorate (ACT), The Strategic Governance Group, http://www.dhcs.act.gov.au/disability_act/sgg#framework (accessed 8 June 2011).

[76]      Department of Human Community Services Directorate (ACT), The Strategic Governance Group, http://www.dhcs.act.gov.au/disability_act/sgg#framework (accessed 8 June 2011).

[77]      New South Wales Government, Stronger Together, http://www.adhc.nsw.gov.au/about/strategies/stronger_together (accessed 8 June 2011).

[78]      New South Wales Government, Submission 62, p. 10.

[79]      New South Wales Government, Stronger Together, A new direction for disability services in NSW 2006–2016, http://www.adhc.nsw.gov.au/__data/assets/file/0014/234212/898_StrongerTogether_20102016_web_071211.pdf (accessed 8 June 2011).

[80]      KPMG, Review of Disability Services in the Northern Territory, Final Report, 2006, http://digitallibrary.health.nt.gov.au/dspace/bitstream/10137/134/1/disability_services_overview_feb2007.pdf (accessed 8 June 2011).

[81]      Department of Communities (QLD) Key impacts of the legislation, http://jobaccess.gov.au/ServiceProviders/Help_available/Help_with_rights_and_responsibilities/Pages/Guide_to_legislation.aspx (accessed 8 June 2011).

[82]      Department of Communities (QLD) Queensland Government Disability Service Plans, http://www.communities.qld.gov.au/disability/key-projects/queensland-government-disability-service-plans (accessed 8 June 2011).

[83]      Department of Communities (QLD) Growing Stronger: Investing in a better disability service system, http://www.communities.qld.gov.au/disability/key-projects/queensland-government-disability-service-plans (accessed 8 June 2011).

[84]      Department for Families and Communities (SA), Ageing and Disability Service Improvement, http://www.dfc.sa.gov.au/pub/Default.aspx?tabid=908 (accessed 8 June 2011).

[85]      Carers Recognition Act 2005 (SA).

[86]      Department of Health and Human Services (TAS), Directions Paper, Content and Structure of New Disability Services Legislation in Tasmania, November 2009, p. 6.

[87]      Department of Human Services (VIC), The Disability Act 2006, http://www.dhs.vic.gov.au/__data/assets/pdf_file/0019/152308/disact_infosheet_1_disact06_0211.pdf (accessed 9 June 2011).

[88]      Department of Human Services (VIC), About the Disability Act 2006, p. 2, http://www.dhs.vic.gov.au/__data/assets/pdf_file/0019/152605/disability_act_web_print_version.pdf (accessed 9 June 2011).       

[89]      Disability WA, A Policy Framework is Born, April 2008, http://www.disability.wa.gov.au/aboutdisability/disabilityserviceshistory/policyframework.html (accessed 9 June 2011).

[90]      Disability Services Commission (WA), Count Me In: Disability Future Directions, 2009, p. 4, http://www.disability.wa.gov.au/dscwr/_assets/main/guidelines/documents/pdf/count_me_in_disability_future_directions.pdf (accessed 9 June 2011).

[91]      Disability Services Commission (WA), Count Me In, http://www.disability.wa.gov.au/countmein.html (accessed 9 June 2011).

[92]      The Productivity Commission has recognised this issue, and has suggested that assessments of need and support packages as part of its proposed National Disability Insurance Scheme would need to be portable across states and territories. Productivity Commission, Draft Report, Disability Care and Support, Volume 1, February 2011, p. 2.

[93]      FaHCSIA, Funding and Operation of the Commonwealth State Territory Disability Agreement (CSTDA), http://www.fahcsia.gov.au/sa/disability/pubs/general/cstda_agreement/Pages/rec_1_5.aspx (accessed 10 June 2011).

[94]      Community and Home Support SA, Disability Services Information Sheet: Moving Interstate, http://www.sa.gov.au/upload/franchise/Community%20Support/Disability/Information%20sheets%20-%20Disability%20SA/moving-interstate.pdf (accessed 9 June 2011).

[95]      Name Withheld, Submission 87, p. 1.

[96]      Ms Helen Bedford, Department of Families, Housing, Community Services and Indigenous Affairs, Committee Hansard, 18 February 2011, p. 24, p. 26.

Chapter 4 - Need for lifelong and sustainable planning

[1]        Family Advocacy, Submission 2, p. 7.

[2]        The formal sector constitutes paid care workers who have the benefit of legal employment protection and rights at work. The informal sector constitutes carers, and family caregivers, who provide unpaid care to people with disabilities and who are offered no workplace protections.

[3]        2009 Australian Bureau of Statistics, Survey of Disability, Ageing and Carers: Summary of Findings, 2010, p. 10. In 2003, 3.9 million Australians were living with disability (20 per cent of the population), of which around 1.2 million were living with a severe or profound limitation (6.3 per cent of the population). People over 65 accounted for 18 per cent of all carers and 24 per cent of primary carers. By comparison in 2009, 4.0 million people were reported as having a disability (18.5 per cent of the population). The rate of profound or severe limitation in the core activities of communication, mobility and self-care declined, from 6.3 per cent in 2003 to 5.8 per cent in 2009. 2009 Australian Bureau of Statistics, Survey of Disability, Ageing and Carers: Summary of Findings, 2010, p. 3.

[4]        2009 Australian Bureau of Statistics, Survey of Disability, Ageing and Carers: Summary of Findings, 2010, p. 10. The committee notes that it received evidence suggesting that the SDAC data is inadequate both in terms of its sampling size. It also received evidence suggesting bias towards English speaking populations. The National Ethnic Disability Alliance (NEDA) estimates are that there are around one million people from non-English speaking backgrounds with disability in Australia. That makes one in four of the general population of people with disability, Committee Hansard, 29 November 2010, p. 45. Numerous witnesses expressed concern about data. Carers Victoria, for example, emphasised that there has been 'little systematic research in Australia about the needs of ageing people with a psychiatric disability and their families', Committee Hansard, 29 November 2010, p. 37.

[5]        In 2003, the Australian Bureau of Statistics identified 28,000 older carers, over 65 years of age who were caring for an adult child, Carers Australia, Submission 39, p. 2. Bedford Group suggested that in South Australia, for example, Carers SA, have predicted that 56 per cent of carers will be over 65 by the year 2031, Submission 29, p. 2.

[6]        2008 Australian Bureau of Statistics, Profile of Carers in Australia, 4448.0, p. 8. According to Carers Australia, the two most common family situations involving older carers are: older carers caring for a son or daughter with disabilities, including psychiatric disabilities; older carers caring for spouse or partner with dementia, chronic conditions, terminal illness or disabilities resulting from ageing, Carers Australia, Submission 39, p. 2.

[7]        Carers SA have predicted that by 2031, 56 percent of carers will be over the age of 65, Bedford Group, Submission 29, p. 2.

[8]        Committee Hansard, 18 February 2011, p. 2.

[9]        Committee Hansard, 18 February 2011, p. 1.

[10]      For more explanation of why planning is not taking place see, Carers Victoria, Submission 54, p. 7. Carers Victoria also suggested that often carers are reluctant to discuss their concerns about the future with other family members, Submission 54, p. 7.

[11]      For example, in its assessment, Carers Victoria suggested, 'few ageing parents are believed to have plans for the future in place', Submission 54, p. 7.

[12]      Answers to questions taken on notice, No. 2, 9 November 2010. FaHCSIA suggested that 25 per cent of carers do not have any contact with the Centrelink system, Committee Hansard, 8 November 2010, p. 8.

[13]      It appears that Ms Baker may herself be struggling with health issues and may require assistance to continue to care. In the 2004–05 Budget, the Commonwealth government announced $72.5 million over four years from 2004–05 to 2007–08, to increase access to respite care for older parents caring for their sons and daughters with a disability. Under this measure, parents aged 70 years and over who provide primary care for a son or daughter with a disability are entitled to up to four weeks respite care a year. Parent carers aged between 65 and 69 who themselves need to be hospitalised are entitled to up to two weeks respite care a year: http://www.fahcsia.gov.au/sa/disability/progserv/govtint/policy-cstda/Pages/default.aspx (accessed: 31 May 2011).

[14]      Committee Hansard, 29 November 2010, pp. 37–38.

[15]      This was clearly expressed by carers who attended a 'Community Forum' in Toowoomba, Committee Hansard, 1 December 2010, pp. 32–44. It has also been expressed in the Anglicare publication, Care to live or live to care?, this study was undertaken with 289 carers 39 per cent of whom were aged 75 or over, see Chapter 2: 'Ageing Parent Carer Well Being': http://www.daisi.asn.au/index.php?option=com_content&view=article&id=168:care-to-live-or-live-to-care-anglicare-report&catid=14:latest-news-a-updates&Itemid=15 (accessed 30 May 2011).

[16]      Down Syndrome NSW, Committee Hansard, 30 November 2011, p. 13.

[17]      Committee Hansard, 30 November 2010, p. 15.

[18]      Dr Ken Baker, National Disability Services, Committee Hansard, 8 November 2010, p. 18.

[19]      Mrs Joyce Bellchambers, Dare to Care, Committee Hansard, 1 December 2010, p. 36.

[20]      Ms Linda Rosie, Mental Health Council of Australia, Committee Hansard, 18 February 2011, p. 11.

[21]      Committee Hansard, 30 November 2010, p. 14.

[22]      It is equally important that those unable to find or maintain employment have the supported option of living outside of the family home.

[23]      Committee Hansard, 30 November 2010, p. 45.

[24]      Committee Hansard, 29 November 2010, p. 13.

[25]      Mai-Wel added: 'I would like know what the Australian population at large would think if we decided that their retirement would be funded through fundraising', Committee Hansard, 30 November 2010, p. 45.

[26]      Committee Hansard, 30 November 2010, p. 58.

[27]      See Down Syndrome NSW, Committee Hansard, 30 November 2010, p. 2.

[28]      For example, Professor Christine Bigby, Committee Hansard, 29 November 2010, p. 15.

[29]      Committee Hansard, 29 November 2010, p. 12.

[30]      Committee Hansard, 18 February 2011, p. 50.

[31]      Committee Hansard, 18 February 2011, pp. 45–46.

[32]      Professor Christine Bigby, Committee Hansard, 29 November 2010, p. 14.

[33]      Committee Hansard, 18 February 2011, p. 50.

[34]      Committee Hansard, 29 November 2010, p. 61.

[35]      See, Scope, Committee Hansard, 29 November 2011, p. 60; Committee Hansard, 30 November 2010, p. 49.

[36]      Committee Hansard, 29 November 2010, p. 21.

[37]      Family Advocacy, Submission 2, p. 6.

[38]      Committee Hansard, 29 November 2010, p. 36.

[39]      Professor Christine Bigby, Committee Hansard, 29 November 2010, p. 13.

[40]      Pave the Way Mamre Association, Submission 18, p. 5.

[41]      See, for example, Carers Victoria, Submission 54, p. 7.

[42]      Committee Hansard, 8 November 2010, p. 44.

Chapter 5 - Barriers to planning

[1]        Anglicare, Care to live or live to care? p. 5, http://www.anglicare.org.au/news-research-events/latest-research/care-to-live-or-live-to-care (accessed 30 May 2011).

[2]        Anglicare, Care to live or live to care? p. 9.

[3]        Anglicare, Care to live or live to care? p. 13.

[4]        Succession planning for carers: Report on consultations—January 2007, prepared by N-Carta Group for the Australian Government, http://www.fahcsia.gov.au/sa/carers/pubs/Documents/SuccessionPlanningReport/exe_summary.htm (accessed 30 May 2011).

[5]        Committee Hansard, 8 November 2010, p. 24.

[6]        Mr Stephen Clarke, Committee Hansard, 30 November 2010, p. 10.

[7]        Ms Gill Pierce, Committee Hansard, 29 November 2010, p. 36.

[8]        Mrs Marita Walker, Committee Hansard, 8 November 2010, p. 47.

[9]        Payments to parents of children with disabilities have evolved from the Handicapped Child's Allowance (1974) which was subsequently replaced by the Child Disability Allowance (1987), and most recently, the Carers Allowance (1999).

[10]      FaHCSIA, Income support customers: A statistical overview 2010, Statistical Paper No. 9, Table 20, http://www.fahcsia.gov.au/about/publicationsarticles/research/statistical/Documents/stps9/default.htm (accessed 5 July 2011).

[11]      Committee Hansard, 30 November 2010, p. 10.

[12]      Committee Hansard, 8 November 2010, p. 8.

[13]      Mr Phillip Farrow, Bedford Group, Committee Hansard, 8 November 2010, p. 40.

[14]      Mr Ah Tong-Pereira also suggested that Vision Australia would support a central portal or one-stop-shop to allow people to access government information about disability services, programs and funding. Committee Hansard, 18 February 2010, pp. 16–17.

[15]      Ms Leah Hobson, Australian Federation of Disability Organisations, Committee Hansard, 29 November 2010, p. 2.

[16]      Mrs Joan Hughes, Committee Hansard, 8 November 2010, p. 27.

[17]      Mrs Joan Hughes, Committee Hansard, 8 November 2010, p. 24.

[18]      Submission 65, p. 3. See also, Bedford Group, answers to questions on notice from public hearing 8 November 2010, p. 2.

[19]      The Hon Kon Vatskalis MLA, Northern Territory, Minister for Health, additional information, 4 April 2011.

[20]      Mrs Lucy Crawford, Mai-Wel, Committee Hansard, 30 November 2010, pp. 43–44.

[21]      Professor Christine Bigby, Committee Hansard, 29 November 2010, p. 12.

[22]      Discussions about the various options for accommodation are found, for example, in Committee Hansard, 29 November 2010, pp 13–18, 32, 39–40, 60, and 75.

[23]      Ms Diana Heggie, Scope, Committee Hansard, 29 November 2010, p. 59.

[24]      Mrs Marita Walker, Perth Home Care Services, Committee Hansard, 8 November 2010, p. 36.

[25]      Mrs Marita Walker, Committee Hansard, 8 November 2010, p. 46.

[26]      Ms Diana Heggie, Scope Victoria, Committee Hansard, 29 November 2010, p. 59.

[27]      The role of local disability service providers is discussed in more detail in Chapter 6. Mrs Lucy Crawford, Committee Hansard, 30 November 2010, p. 52.

[28]      Ms Margaret Cooper, Women with Disabilities Australia, Committee Hansard, 29 November 2010, p. 25.

[29]      Mr David Heckendorf, Committee Hansard, 8 November 2010, p. 35.

[30]      Centrelink, Special Disability Trusts,June 2011,  http://www.centrelink.gov.au/internet/internet.nsf/publications/fis034.htm (accessed 27 June 2011).

[31]      Committee Hansard, 8 November 2010, p. 21.

[32]      Ms Gill Pierce, Committee Hansard, 29 November 2010, p. 35.

[33]      Future Living Trust, Submission 83, p. 3.

[34]      Ms Belinda Epstein-Frisch, Committee Hansard, 30 November 2010, p. 76.

[35]      Mrs Joan Hughes, Carers Australia, Committee Hansard, 8 November 2010, p. 25.

[36]      Mrs Joan Hughes, Committee Hansard, 8 November 2010, p. 24.

[37]      Mrs Joyce Bellchambers, Dare to Care, Committee Hansard, 30 November 2010, p. 81.

[38]      Committee Hansard, 8 November 2010, p. 17.

[39]      Mrs Del Woodcock, Disability Services, Committee Hansard, 1 December 2010, p. 36.

[40]      Mrs Melissa Young, Perth Home Care Services, Committee Hansard, 8 November 2010, p. 48.

[41]      Mental Health Council of Australia, Committee Hansard, 18 February 2010, p. 9.

[42]      Committee Hansard, 18 February 2010, p. 32.

[43]      Committee Hansard, 18 February 2010, pp. 12–13.

[44]      Committee Hansard, 18 February 2010, p. 10.

[45]      FaHCSIA, Personal Helpers and Mentors Brochure, February 2010, http://www.fahcsia.gov.au/sa/mentalhealth/pubs/Pages/phams_brochure.aspx (accessed 1 July 2011).

[46]      Mrs Cathrine Raju, Mamre Association, Committee Hansard, 1 December 2010, p. 17.

[47]      Mr Michael Bleasdale, People with Disability Australia, 30 November 2010, p. 56.

[48]      Carers Victoria, Committee Hansard, 29 November 2010, pp. 38-39.

[49]      Professor Christine Bigby, Committee Hansard, 29 November 2010, p. 13.

[50]      See for example, Professor Chistine Bigby, Committee Hansard, 29 November 2010, p. 13.

[51]      Mr Stephen Albert, Western Australian Aboriginal Education and Training Council, Committee Hansard, 18 February 2010, p. 64.

[52]      Disability Services Commission WA, Aboriginal People with Disabilities: Getting services right, April 2006, West Perth, pp. 19–25.

[53]      Committee Hansard, 18 February 2010, p. 64.

[54]      Committee Hansard, 18 February 2010, p. 65.

[55]      This can be due to transport and other additional costs. Mrs Margaret Haskal, Mai-Wel, Committee Hansard, 30 November 2010, p. 51.

[56]      Ms Leah Hobson, Committee Hansard, 29 November 2010, p. 2.

[57]      Mrs Del Woodcock, Disability Services, Committee Hansard, 1 December 2010, p. 42.

[58]      Mrs Annette Gerrard, Committee Hansard, 1 December 2010, p. 43.

[59]      Miss Carol Coombes, Committee Hansard, 1 December 2010, p. 43.

Chapter 6 - Current lifelong planning and support schemes

[1]        Pave the Way Mamre Association, Submission 18, p. 5.

[2]        Pave the Way Mamre Association, Committee Hansard, 1 December 2010, p. 16.

[3]        Committee Hansard, 30 November 2010, p. 67.

[4]        These examples are taken from evidence provided by Ms Epstein-Frisch, Committee Hansard, 30 November 2011; Futures Alliance, Committee Hansard, 30 November 2011; Mrs Lorraine Hitt, Planned Individual Networks, Committee Hansard, 18 February 2011; Mrs Fay McKenzie, Committee Hansard, 1 December 2010, p. 25; Mental Health Council of Australia, Committee Hansard, 18 February 2011.

[5]        Committee Hansard, 29 November 2010, pp. 66–67.

[6]        Mrs Lorraine Hitt, Planned Individual Networks, Committee Hansard, 18 February 2011, p. 84.

[7]        Committee Hansard, 18 February 2011, p. 82.

[8]        Committee Hansard, 18 February 2011, p. 92.

[9]        Committee Hansard, 18 February 2011, p. 83.

[10]      Committee Hansard, 18 February 2011, p. 83.

[11]      Submission 18, p. 2.

[12]      Pave the Way, Marme Association website: http://www.pavetheway.org.au/ (accessed 27 June).

[13]      Submission 18, p. 3.

[14]      Submission 18, p. 1.

[15]      See Pave the Way's planning booklet, 'Planning for Now, Tomorrow and the Future': http://www.pavetheway.org.au/pdf/planning.pdf and Submission 18, p. 1.

[16]      Submission 83, p. 1.

[17]      Submission 83, p. 3.

[18]      Committee Hansard, 8 November 2010, p. 44.

[19]      Submission 47, p. 1.

[20]      Vela Microboards Australia, http://www.microboard.org.au/ (accessed 27 June 2011).

[21]      Committee Hansard, 8 November 2010, p. 47. VMA is predominantly made up of people with disabilities, their families and microboard members who are working to establish individual microboards. Mircoboards also look for ways that the wider community can have a relationship with the person with a disability. Vela Microboards Australia, http://www.microboard.org.au/page/what_is_vela_microboard_australia (accessed 27 June 2011).

[22]      Vela Microboards Australia, http://www.microboard.org.au/ (accessed 27 June 2011).

[23]      Committee Hansard, 18 February 2011, p. 74.

[24]      Committee Hansard, 8 November 2010, p. 47.

[25]      Committee Hansard, 30 November 2010, p. 67.

[26]      Committee Hansard, 30 November 2010, p. 68.

[27]      Committee Hansard, 30 November 2010, p. 39.

[28]      Committee Hansard, 29 November 2010, p. 34.

[29]      Committee Hansard, 30 November 2010, p. 23.

[30]      Ms Melissa Young, Perth Home Care Services, Answers to Questions on Notice, received: 25 November 2010, p. 2.

[31]      Pave the Way, Committee Hansard, 1 December 2010, p. 16.

[32]      Committee Hansard, 18 February 2011, p. 83.

[33]      Committee Hansard, 30 November 2010, p. 69.

[34]      Committee Hansard, 30 November 2010, pp. 15–16.

[35]      See, for example, People with Disability Australia, Committee Hansard, 30 November 2010, p. 55.

[36]      Committee Hansard, 30 November 2010, p. 19.

[37]      Committee Hansard, 18 February 2011, p. 85.

[38]      With respect to the cost of facilitation services families pay a $1,100 lifetime membership and they pay $35 an hour for the facilitator's time, Committee Hansard, 18 February 2011, p. 86.

[39]      Committee Hansard, 18 February 2011, p. 86.

[40]      Committee Hansard, 18 February 2011, p. 87.

[41]      Committee Hansard, 18 February 2011, p. 84.