Appendix 1

Submissions and additional information

Submissions

1          Ms Wendy Jackson

2          Mr Tom Murkin

            2.1 Supplementary to submission 2

3          Ms Jacqueline Ohlin

4          Ms Melissa Iocco-Fischer

5          Mrs Judith Polkinghorne

6          Ms Christine Jones

7          Mrs Sandra Woods

8          Ms Linda Ferguson

9          Pancare Foundation

10       Ms Dianne Pooley

11       Mrs Emma Bhatti

12       Mr Troy Bevan

13       Mrs Michelle Patterson

14       Mrs Natalie Bunworth

15       Mr Brendan Spain

16       Mrs Amanda Marriott

17       Ms Bonnie Palmer

18       Mrs Suzanne Turpie

19       Mrs Margaret Shonk

20       Mrs Judith Hearn

            20.1 Supplementary to submission 20

21       Ms Lisa Wolker

22       Mrs Victoria Bushby

23       Ms Fiona Smith

24       Mr Stefan Testi

25       Ms Raquel Oliveira

26       Ms Karen Lloyd

27       Dr Sigrid Denehey

28       Mr Derek Maule

29       Mrs Rita Potenza

30       Asbestos Council of Victoria/GARDS

31       Mr Alex Cullen

32       Ms Jacqueline Walling

33       Mrs LeShae Harrison

34       Garvan Institute of Medical Research/Garvan Research Foundation

35       Mrs Madeline Bishop

36       Ms Helen Atkinson

37       Mrs Marj Salter

38       Mr David Stratton

39       Mr Graham Wells

40       Mrs Isabella Borghese

41       Mrs Marcella Zemanek

42       Mrs Joanna Wilson

43       Mr Tim Eliot

44       Mrs Teresa Briggs

45       Mr Dustin Perry

46       Mrs Therese Townsend

47       Mrs Natalie Wainman

48       UNSW Sydney & SPHERE

49       Centre for Community-Driven Research

50       Rare Cancers Australia

51       Professor Guy Eslick

52       Mrs T. Taylor

53       Mrs Raechel Burgett

54       Mrs Deborah Dunkley

55       Mrs Julie Brown

56       Mr Brendan Donohoe

57       Mr Thomas Smith

58       Ms Laura Kennedy

59       Ms Nadine Walsh

60       Brain Cancer Discovery Collaborative

61       Cancer Voices Australia

62       Mr Philippe Pierson

63       Mr Jason Spriggs

64       Mr Steven Coote

65       Mrs Kate Peacock

66       Mrs Maureen Fogarty

67       Mr Paul Jones

68       Ms Helen Cassidy

69       Mrs Kathryn Winsor-Harris

70       Mrs Sue Hohnke

71       Ms Georgina O'Brien

72       Mrs Yvonne Anthoney

73       The Cure Starts Now (Australia)

74       Prof. Richard Scolyer, Melanoma Institute Australia

75       Ms Kate Wenban

76       Ms Ruth Churchill

77       Mrs Lyndal Lean

78       Ms Elizabeth Perry

79       Mr Brett Withington

80       QIMR Berghofer Medical Research Institute

81       Ms Julia Barker

82       Mrs Susan Kay

83       Australian Institute of Health and Welfare

            83.1 Supplementary to submission 83

84       Ethan Davies Fellowship

85       Australasian Gastro-Intestinal Trials Group

86       Ms Julie Butel

87       National Health and Medical Research Council (NHMRC)

88       Children's Cancer Research Unit, The Children's Hospital at Westmead

89       Lung Foundation Australia

90       Low Survival Cancers Alliance

91       Mrs Jane Gordon

92       Mr Andrew Jakeman

93       Miss Lolita Rahi

94       Mr Paul Bird

95       Ms Tanya Cardamone

96       Mr Justin Benson

97       Mrs Sheree Gover

98       Mr Denis Strangman AM

            98.1 Supplementary to submission 98

99       Mr Jonathan Karl Fretwell

100     Mrs Rachel Furniss

101     The Unicorn Foundation

102     Pancreatic Cancer Alliance

103     Thoracic Society of Australia and New Zealand (TSANZ)

            103.1 Supplementary to submission 103

104     Associate Professor Prue Cormie

105     Mr Jon May

106     Mrs Jessica Bennett

107     Mr Brian Holloway

108     Ms Michelle Bradley

109     Ms Barbara Purcell

110     Mr Khang Chiem

111     Mrs Kellie Carroll

112     Medical Oncology Group of Australia

113     Mark Hughes Foundation

114     Victorian Comprehensive Cancer Centre

115     MSD Merck Sharp & Dohme (Australia) Pty Ltd

116     Mrs Carly Gray

117     Mr Simon Gray

118     Mr Martin Lister

119     Brain Cancer Biobanking Australia

120     LOVE FOR LACHIE

121     Australasian Leukaemia & Lymphoma Group

122     Research Australia

123     NSWOG Neuro-oncology

124     Roche Products Pty Limited

125     ANZCHOG National Patient and Carer Advisory Group

126     The Walter and Eliza Hall Institute of Medical Research

127     Brain Tumour Alliance Australia

128     CanTeen Australia

129     Cancer Australia

130     Sydney Neuro-Oncology Group

131     The Isabella and Marcus Paediatric Brainstem Tumour Fund

132     The University of Newcastle and Hunter Medical Research Institute

133     Queensland Brain Institute (UQ)

134     Rare Voices Australia

135     Braver Stronger Smarter Inc

136     The Kids' Cancer Project

137     Cancer Council Australia & the Clinical Oncology Society of Australia

138     Cooperative Trials Group for Neuro-Oncololgy (COGNO)

139     Cure Brain Cancer Foundation

140     checkyourtackle

141     Medicines Australia

142     Mr Andrew Hamilton

143     Ms Belinda Peden

144     Mr Graham Smith

145     Mrs Christine Goodman

146     Mr Steven Neller

147     Ms Anne Murphy

148     Ms Jessica Annetts

149     Ms Susanne Casimaty

150     Mr Benjamin Leske

151     The Adnum Family

152     Mrs Bridget Marker

153     Miss Kaela Gray

154     Mrs Kathy Farrell

155     Mrs Leah Lane

156     Mr Bruce Stewart

157     Mr Anthony Gray

158     Mrs Jennifer Swain

159     Mrs Sarah McGoram

160     Mrs Dominique Holden

161     Professor Mary-Louise McLaws

162     Miss Melanie Johnston

163     Mr Myles Brewster

164     Ms Lyn Barker

165     Mr Thomas Greenaway

166     Mrs Mary Cranston

167     Australia and New Zealand Melanoma Trials Group

168     Mrs Fleur Kay

169     Mrs K. Webster

170     Ms Robin Berthelsen

171     Ms Brianna Armstead

172     Mrs Katherine Landers

173     Ms Kathie Griffiths

174     Mr Nick Lowman

175     The Dullard Family

176     Mr Gino Iori

177     Mr Leo Harlond

178     Mrs Soo Fong Hamilton

179     Mrs Amanda Stork

180     Mrs Lyndall Bates

181     Mrs Pauline Stanistreet

182     Mr Norman Stanistreet

183     Mr Hugo Zweep

184     Mr Robert Perkins

185     Mrs Karyn Harris

186     Ms Anna Kelly

187     Cancer Drugs Alliance

188     Ms Anne Cashman

189     Ms Diane Dunn

190     Ms Morgana Ryan

191     Ms Kylie Newton

192     Ms Evangeline Lim

193     Mr Jake Briggs

194     Ms Helen Jones

195     Ms Leanne Lindsay

196     Ms N. Sheehan

197     Mr Geoff Webster

198     Ms Sophie Briggs

199     Mr Manuel Graeber

200     Mr Ward Jongebloed

201     Mr Michael Buckland

202     Ms Andrea Ward

203     Ms Krystyna Zerger-Daddow

204     CSIRO

205     School of Public Health and Preventive Medicine, Monash University

206     Mrs Deirdre Ross

207     Mr Tom Akhurst

208     Mrs Rebecca Bidstrup

209     Ms Belinda Suttor

210     Ms Cynthia Sargent

211     Mrs Faith Mantzounis

212     Mr Tom Wood

213     Miss Maddy Clohessy

214     Mrs Natasha Osborne

215     Mrs Sara Wilson

216     Dr Fiona Reid

217     Mrs Lisa Harries

218     Mrs Catherine Mitchell

219     Mrs Jackie Barreau

220     Mrs Debra Ponder

221     Mr Ian Becker

222     Mr Donald Kennedy

223     Mrs Tami Collins

224     Mrs Rose McKenzie

225     Mr Sydney Rudd-Schmidt

226     Ms Kylie Rupil

227     Mr Daniel Robinson

228     Mr Christopher Hicks

229     Dr Rachel Harris

230     Mrs Lisa Judd

231     Mrs Michelle Armstrong

232     Ms Susan Pitt

233     Mr Leigh Armstrong

234     Ms Monika Schmidt

235     Mr Cameron Rowick

236     Miss Elyse Chant

237     Australian and New Zealand Children's Haematology and Oncology Group (ANZCHOG)

238     Mrs Helen Pegler

239     Mr Sam Heyes

240     Mr Phil Reynolds

241     Ms Marilyn Nelson

242     Ovarian Cancer Australia

243     Robert Connor Dawes Foundation

244     Bourne and Associates

245     Mr William Williams

246     Mr Colin Bienke

247     Ms Suzanne Cahill

248     Ms Anna Rothwell

249     Name Withheld

250     Mr Frane Vidovic

251     Mrs Stephanie Vaughan

252     Professor Terrance Johns

253     Ms Caroline Greenaway

254     Mr Matthew Hirst

255     Ms Denise Brown

256     Mrs Anna-Marie Griffith

257     Ms Nyree Waterson

258     Mrs Emilie Prendergast

259     Mrs Amanda Fintan

261     Ms Poppy Mosses

262     Mr Richard Hoopmann

263     Mrs Carol Rodgers

264     Ms Catherine Cantlon

265     Ms Frances Burrows

266     Ms Clare Stuparich

267     Mr Tony La Ferrara

268     Ms Sarah Mamalai

269     Professor David Walker

270     Confidential

271     Centre for Cancer Biology

272     Ms Katrina Hill

273     Mrs Alice Findlay

274     Children's Hospital Foundation

275     Mr Michael Mestrovic

276     Ms Sherrin Bell

277     Ms Rhonda Stubbins

278     Mr Peter Ramstadius

279     Ms Annabelle Wilson

280     Children's Hospital Foundation/Australian Centre for Health Services Innovation

281     Ms Jo Justo

282     Dr Andrew Haydon (an identical submission was also received from Dr Alan Pham)

283     Mr Tony Monaghan

284     Ms Jo Kuropatoff

285     Ms Louise Casamento

286     Confidential

287     Mr John Hackett

288     Mr Martin Shafron

289     Bristol-Meyer Squibb

290     Name Withheld

291     Name Withheld

292     Name Withheld

293     Name Withheld

294     Name Withheld

295     Name Withheld

296     Name Withheld

297     Name Withheld

298     Name Withheld

299     Name Withheld

300     Name Withheld

301     Beyond Five

302     Name Withheld

303     Name Withheld

304     Name Withheld

305     Name Withheld

306     Name Withheld

307     Name Withheld

308     Name Withheld

309     Name Withheld

310     Name Withheld

311     Name Withheld

312     Name Withheld

313     Confidential

314     Confidential

315     Confidential

316     Confidential

317     Confidential

318     Confidential

319     Confidential

320     Confidential

321     Ms Paula McKelvie

322     Mrs Jessica Nightingall

323     Mr Roger Renshaw

324     Mr Scott Thomson

325     Ms Rachel Cutler

326     Mrs Trudy Fittler

Tabled documents

1       Documents tabled by the Australian Gastro-Intestinal Trials Group at public hearing on 18 May 2017 - Research Infrastructure Funding

2       Document tabled by Associate Professor Michael Buckland at public hearing on 18 May 2017 - The Utility of Expert Diagnosis in Surgical Neuropathology

3       Documents tabled by Ms Marilyn Nelson at public hearing on 6 June 2017 - Documents

4       Document tabled by Ms Catherine Peacock at public hearing on 7 June 2017 - Document 

5       Document tabled by Professor David Thomas at public hearing on 8 June 2017 - Document

6       Documents tabled by the Brain Tumour Alliance Australia at public hearing on 8 June 2017 - List of documents tabled

7       Document tabled by Ovarian Cancer Australia at a public hearing on 4 August 2017 - National action plan for ovarian cancer research

8       Document tabled by Department of Health at a public hearing on 29 August 2017 - Medical Research Future Fund, Lifting Clinical Trials and Registries Capacity (LCTRC) Grant Guidelines

9       Document tabled Department of Health at a public hearing on 29 August 2017 - Medical Research Future Fund: Australian Medical Research and Innovation Strategy 2016-2021 and Australian Medical Research and Innovation Priorities 2016-2018

10     Document tabled by the Department of Health at a public hearing on 29 August 2017 - Medical Research Future Fund information sheets 

Answers to questions on notice

1          Australian Charities and Not-for-profits Commission (ACNC) - answer to a written question on notice (received 27 February 2017) 

2          CanTeen Australia - answers to questions taken on notice from public hearing 19 May 2017, Sydney (received 9 June 2017) 

3          Australian Institute of Health and Welfare (AIHW) - answers to questions taken on notice from public hearing 8 June 2017, Canberra and written QoN dated 14 June 2017 (received 3 July 2017) 

4          National Health and Medical Research Council (NHMRC) - answers to questions taken on notice from public hearing 29 August 2017, Canberra (received 19 September 2017) 

5          Department of Health - answer to question taken on notice from public hearing 29 August 2017, Canberra (received 22 September 2017) 

6          Cancer Australia - answer to question taken on notice from public hearing 29 August 2017, Canberra (received 22 September 2017) 

7          Cancer Council Victoria - answers to questions taken on notice from public hearing 18 May 2017, Sydney (received 18 October 2017 

8          Medicines Australia - answers to questions taken on notice from public hearing 8 June 2017, Canberra (received 20 October 2017) 

Additional information

1          Summary of the Australian Genomic Cancer Medicine Program and costing breakdown 

2          Garvan Institute - Proposal: national genomic cancer medicine program for rare and less common cancers (received 6 September 2017) 

3          Finding Myself In Your Hands -The Reality of Brain Tumour Treatment and Care

4          Losing Myself - The Reality of Life with a Brain Tumour 

Correspondence

1          Letter of correction to evidence given by Associate Professor Clare Scott at public hearing in Melbourne, 4 August 2017 

2          Letter of correction to evidence given on behalf of Cancer Australia at the public hearing in Canberra, 29 August 2017 

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