Labor Senators share the privacy and security concerns expressed in the
Chair's report. In particular, we agree that the Government's botched
implementation of an opt-out model means 'an unreasonable compromise has been
struck between ensuring the utility of the system ... and safeguarding the
privacy and safety of healthcare recipients'.
Labor Senators therefore urge the Government to commission an
independent review of the My Health Record system by the Privacy Commissioner
and the Office of the Australian Information Commissioner, which has itself
called for further consideration of several privacy and security concerns.
In particular, the Privacy Commissioner and OAIC should consider:
- the appropriate balance between utility for clinicians, patients
and others (such as carers), and privacy and security for individuals;
the difficulty of ensuring informed consent in an opt-out model,
and measures to encourage consumer engagement and informed choice;
- changes to default access settings that are necessary because of
the shift to an opt-out model (from an opt-in model, where informed consent was
- particular protections for vulnerable people, including minors
aged 14-17 and families fleeing domestic violence; and
- further legislative, policy and system changes that are needed to
achieve these aims.
In the meantime, the Government must suspend the opt-out rollout until
the Privacy Commissioner and OAIC report, the Government makes necessary
changes, and public confidence in this important reform is restored.
|Senator the Hon Kristina Keneally
|Senator the Hon Lisa Singh
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