Footnotes

Chapter 1 - Introduction

[1]        Journals of the Senate, no 70 – 23 November 2011, p. 1910.

[2]        Journals of the Senate, no 108 – 11 September 2012, p. 2934.

[3]        Journals of the Senate, no 70 – 23 November 2011, pp. 1910–1911.

[4]        Australian Health Ministers Conference, National Palliative Care Strategy 2010: Supporting Australians to Live Well at the End of Life, 2010, p. 4.

[5]        The PCWG was previously named the Palliative Care Intergovernmental Forum – it is the body responsible for the implementation of the national strategy and falls under the AHMAC committee structure. Source: Department of Health and Ageing, Submission 96, p. 2.

[6]        Department of Health and Ageing, Submission 96, p. 3.

[7]        Ms Kim McCartney, Committee Hansard, 4 July 2012, p. 40.

[8]        Ms Kim McCartney, Committee Hansard, 4 July 2012, p. 40.

[9]        Ms Cherie Waight, Victorian Aboriginal Care Project Coordinator, Victorian Aboriginal Community Controlled Health Organisation, Committee Hansard, 4 July 2012, p. 47.

[10]      Mrs Marie Robinson, Community Care Adviser, BlueCare, Committee Hansard, 2 July 2012, p. 1.

[11]      Dr Jenny Hynson, Australia and New Zealand Paediatric Palliative Care Reference Group, Committee Hansard, 4 July 2012, pp. 29–30.

[12]      Palliative Care Australia, Submission 98, p. 9.

[13]      Professor Jane Phillips, Professor of Palliative Nursing, University of Notre Dame and St Vincent's Sacred Heart, Sydney, Committee Hansard, 2 July 2012, p. 62.

[14]      Dr Leslie Bolitho AM, President, Royal Australasian College of Physicians, Committee Hansard, 2 July 2012, p. 12.

[15]      Mr Peter Cleasby, President, Palliative Care New South Wales, Committee Hansard, 2 July 2012, p. 56.

[16]      Mr Peter Cleasby, Palliative Care New South Wales, Committee Hansard, 2 July 2012, p. 56.

[17]      Mr Peter Jenkin, nurse practitioner candidate, Resthaven Inc., Committee Hansard, 5 July 2012, pp. 8–9.

[18]      Australian Health Ministers Conference, National Palliative Care Strategy 2010: Supporting Australians to Live Well at the End of Life, 2010, p. 6.

[19]      Department of Health and Ageing, Submission 96, p. 2.

[20]      Australian Health Ministers Conference, National Palliative Care Strategy 2010: Supporting Australians to Live Well at the End of Life, 2010, p. 5.

Chapter 2 - Guidelines and Standards

[1]        Australian Government Department of Health and Ageing, Guidelines for a Palliative Approach for Aged Care in the Community Setting – Best practice guidelines for the Australian context, 2011, p. 2.

[2]        Australian Government Department of Health and Ageing, Guidelines for a Palliative Approach for Aged Care in the Community Setting – Best practice guidelines for the Australian context, 2011, p. 2.

[3]        Palliative Care Australia, Standards for Providing Quality Palliative Care for all Australians, 2005, pp. 8–9.

[4]        Palliative Care Australia, Standards for Providing Quality Palliative Care for all Australians, 2005, p. 2.

[5]        Department of Health and Ageing, Submission 96, p. 3.

[6]        Mr Nathan Smyth, First Assistant Secretary, Population Health Division, Department of Health and Ageing, Committee Hansard, 10 July 2012, p. 39.

[7]        Ms Rachel Balmanno, Acting First Assistant Secretary, Ageing and Aged Care Division, Department of Health and Ageing, Committee Hansard, 10 July 2012, p. 39.

[8]        Mr David Butt, Deputy Secretary, Department of Health and Ageing, Committee Hansard, 10 July 2012, pp. 38–39.

[9]        Mr David Butt, Department of Health and Ageing, Committee Hansard, 10 July 2012, pp. 38–39.

[10]      Mr Nathan Smyth, Department of Health and Ageing, Committee Hansard, 10 July 2012, p. 40.

[11]      Mr David Butt, Department of Health and Ageing, Committee Hansard, 10 July 2012, p. 40.

[12]      Alzheimer's Australia, Supplementary Submission 44, p. 4.

[13]      Alzheimer's Australia, Supplementary Submission 44, p. 4.

[14]      Mr David Butt, Deputy Secretary; Mr Andy Paras, Director, Cancer and Palliative Care Branch, Population Health Division, Department of Health and Ageing, Committee Hansard, 24 April 2012, p. 8.

[15]      Mr Trevor Carr, Chief Executive, Victorian Healthcare Association, Committee Hansard, 4 July 2012, p. 11.

[16]      Mr Martin Laverty, Chief Executive Officer, Catholic Health Australia, Committee Hansard, 2 July 2012, p. 36.

[17]      ACSQH – the Australian Commission on Safety and Quality in Healthcare.

[18]      Mr Martin Laverty, Catholic Health Australia, Committee Hansard, 2 July 2012, p. 33.

[19]      Mr Martin Laverty, Catholic Health Australia, Committee Hansard, 2 July 2012, p. 35.

[20]      Mr Martin Laverty, Catholic Health Australia, Committee Hansard, 2 July 2012, p. 35.

[21]      Mr Martin Laverty, Catholic Health Australia, Committee Hansard, 2 July 2012, p. 36.

[22]      Mr Martin Laverty, Catholic Health Australia, Committee Hansard, 2 July 2012, p. 40.

[23]      Mr Martin Laverty, Catholic Health Australia, Committee Hansard, 2 July 2012, p. 40.

[24]      Dr Scott Blackwell, President, Palliative Care Australia, Committee Hansard, 10 July 2012, p. 11.

[25]      Professor Jane Phillips, Professor of Palliative Nursing, University of Notre Dame and St Vincent's Sacred Heart, Committee Hansard, 2 July 2012, p. 58.

[26]      Mr Mark Cockayne, General Manager, Health and Director, Hospice Care Service, Silver Chain; Mr Stephen Carmody, Chief Operating Officer, Silver Chain, Committee Hansard, 5 July 2012, pp. 38–39.

[27]      Ms Susanne McKechnie, Resthaven Inc., Committee Hansard, 5 July 2012, p. 15.

[28]      Mr Nicolas Mersiades, Senior Aged Care Adviser; Ms Wendy Porter, Residential Care Manager, Aged and Community Services Australia, Committee Hansard, 10 July 2012, pp. 20–21.

[29]      Ms Wendy Porter, Aged and Community Services Australia, Committee Hansard, 10 July 2012, pp. 25–26.

[30]      Dr Scott Blackwell, President, Palliative Care Australia, Committee Hansard, 10 July 2012, p. 13.

[31]      Dr Scott Blackwell, President, Palliative Care Australia, Committee Hansard, 10 July 2012, p. 13.

Chapter 3 - The federal funding of palliative care in Australia

[1]        Council of Australian Governments, National Health Reform Agreement, 2 August 2011, p. 4.

[2]        Australian Health Ministers Conference, National Palliative Care Strategy 2010: Supporting Australians to Live Well at the End of Life, 2010, p. 5.

[3]        Department of Health and Ageing, answer to question taken on notice (question 2), received 23 May 2012.

[4]        Mr David Butt, Deputy Secretary, Department of Health and Ageing, Committee Hansard, 24 April 2012, p. 12.

[5]        Ms Ann Smith, Assistant Secretary, National Partnership Agreement Branch, Acute Care Division, Department of Health and Ageing, Committee Hansard, 24 April 2012, pp. 10–12.

[6]        Council of Australian Governments, National Partnership Agreement in Hospital and Health Workforce Reform, p. 3. http://www.ahwo.gov.au/documents/COAG/National%20Partnership%20Agreement%20on%20Hospital%20and%20Health%20Workforce%20Reform.pdf (accessed 27 August 2012).

[7]        Council of Australian Governments, National Partnership Agreement in Hospital and Health Workforce Reform, p. 3. http://www.ahwo.gov.au/documents/COAG/National%20Partnership%20Agreement%20on%20Hospital%20and%20Health%20Workforce%20Reform.pdf (accessed 27 August 2012).

[8]        Council of Australian Governments, National Partnership Agreement in Hospital and Health Workforce Reform, p.11 http://www.ahwo.gov.au/documents/COAG/National%20Partnership%20Agreement%20on%20Hospital%20and%20Health%20Workforce%20Reform.pdf (accessed 27 August 2012).

[9]        Council of Australian Governments, National Partnership Agreement in Hospital and Health Workforce Reform, p.11 http://www.ahwo.gov.au/documents/COAG/National%20Partnership%20Agreement%20on%20Hospital%20and%20Health%20Workforce%20Reform.pdf (accessed 27 August 2012).

[10]      Ms Ann Smith, Department of Health and Ageing, Committee Hansard, 24 April 2012, pp. 11–12.

[11]      Ms Ann Smith, Department of Health and Ageing, Committee Hansard, 24 April 2012, pp. 11–12.

[12]      The VHA is the major peak body representing the public healthcare sector in Victoria. Its members include public hospitals, rural and regional health services, community health services and aged care facilities. Established since 1938, the VHA promotes the improvement of health outcomes for all Victorians, from the perspective of its members. Source: Victorian Healthcare Association, Submission 57, p. 1.

[13]      Victorian Healthcare Association, Submission 57, p. 3.

[14]      Mr Trevor Carr, Chief Executive, Victorian Healthcare Association, Committee Hansard, 4 July 2012, p. 11.

[15]      Dr Yvonne Luxford, Chief Executive Officer, Palliative Care Australia, Committee Hansard, 10 July 2012, p. 14.

[16]      Eastern Palliative Care is an organisation that was developed following the competitive tendering of community based palliative care in 1997. Three agencies—the Order of Malta, St Vincent's Melbourne and Melbourne East Palliative Care Association—tendered for the right to provide services. They were successful and invited Outer East Palliative Care Service to be part of EPC so that the new organisation could provide services right across the entire eastern region of 2,963 square kilometres, and that includes a lot of metropolitan areas. Since 1997, members of these partner bodies have been the governing body. Source: Ms Jeanette Moody, Chief Executive Officer, Eastern Palliative Care Association Inc, Committee Hansard, 4 July 2012, p. 1.

[17]      Ms Jeanette Moody, Chief Executive Officer, Eastern Palliative Care Association Inc., Committee Hansard, 4 July 2012, p. 7.

[18]      Ms Jeannette Moody, Chief Executive Officer, Ms Christine Pedley, Manager, Allied Health, Eastern Palliative Care Association Inc., Committee Hansard, 4 July 2012, p. 8.

[19]      Mr Nicolas Mersiades, Senior Aged Care Adviser, Aged and Community Services Australia, Committee Hansard, 10 July 2012, p. 26.

[20]      Dr Leslie Bolitho AM, President, Royal Australasian College of Physicians, Committee Hansard, 2 July 2012, p. 9.

[21]      Mr Nicolas Mersiades, Aged and Community Services Australia; Ms Jo Root, National Policy Manager, COTA, Committee Hansard, 10 July 2012, p. 26.

[22]      Council of Australian Governments, The National Health Reform Agreement – National Partnership Agreement on Improving Public Hospital Services, p. 4 http://www.yourhealth.gov.au/internet/yourhealth/publishing.nsf/Content/npa-improvingpublichospitals-agreement/$File/National%20Partnership%20Agreement%20on%20Improving%20Public%20Hospital%20Services.pdf (accessed 27 August 2012).

[23]      Council of Australian Governments, The National Health Reform Agreement – National Partnership Agreement on Improving Public Hospital Services, p. 43  http://www.yourhealth.gov.au/internet/yourhealth/publishing.nsf/Content/npa-improvingpublichospitals-agreement/$File/National%20Partnership%20Agreement%20on%20Improving%20Public%20Hospital%20Services.pdf (accessed 27 August 2012).

[24]      'Bundling' refers to the fact that the category of subacute care includes palliative care, rehabilitation, geriatric evaluation and management, psychogeriatric care and in some cases subacute mental health.

[25]      Ms Ann Smith, Department of Health and Ageing, Committee Hansard, 24 April 2012, pp. 10–12.

[26]      Ms Ann Smith, Department of Health and Ageing, Committee Hansard, 24 April 2012, pp. 11–12.

[27]      Ms Ann Smith, Department of Health and Ageing, Committee Hansard, 24 April 2012, pp. 11–12.

[28]      Ms Ann Smith, Department of Health and Ageing, Committee Hansard, 24 April 2012, pp. 11–12.

[29]      Ms Ann Smith, Department of Health and Ageing, Committee Hansard, 24 April 2012, pp. 11–12.

[30]      Professor David Currow, Professor of Palliative and Supportive Services, Flinders University, Committee Hansard, 2 July 2012, p. 63.

[31]      Professor David Currow, Committee Hansard, 2 July 2012, p. 63.

[32]      Department of Health and Ageing, Submission 96, p. 6.

[33]      Department of Health and Ageing, The Australian Government's National Palliative Care Program http://www.health.gov.au/internet/main/publishing.nsf/Content/palliativecare-program.htm (accessed 19 September 2012).

[34]      Department of Health and Ageing, The Australian Government's National Palliative Care Program http://www.health.gov.au/internet/main/publishing.nsf/Content/palliativecare-program.htm (accessed 19 September 2012).

[35]      Department of Health and Ageing, The Australian Government's National Palliative Care Program http://www.health.gov.au/internet/main/publishing.nsf/Content/palliativecare-program.htm (accessed 19 September 2012).

[36]      Department of Health and Ageing, The Australian Government's National Palliative Care Program http://www.health.gov.au/internet/main/publishing.nsf/Content/palliativecare-program.htm (accessed 19 September 2012).

[37]      Department of Health and Ageing, The Australian Government's National Palliative Care Program http://www.health.gov.au/internet/main/publishing.nsf/Content/palliativecare-program.htm (accessed 19 September 2012).

[38]      Dr Yvonne Luxford, Palliative Care Australia, Committee Hansard, 10 July 2012, p. 14.

[39]      Palliative Care Australia, Submission 94, p. 80.

[40]      Mr John Haberecht, President, Palliative Care Nurses Australia, Committee Hansard, 24 April 2012, p. 58.

[41]      Palliative Care Australia, Submission 94, p. 81.

[42]      Dr Leslie Bolitho AM, President, Royal Australasian College of Physicians, Committee Hansard, 2 July 2012, p. 9.

[43]      Australian and New Zealand Society of Palliative Medicine Incorporated, Submission 33, p. 10.

[44]      Mercy Health, Submission 58, p. 5.

[45]      Dr Yvonne Luxford, Chief Executive Officer; Dr Ian White, National Policy and Communications Manager, Palliative Care Australia, Committee Hansard, 24 April 2012, p. 19.

[46]      Mr Peter Cleasby, President, Palliative Care New South Wales, Committee Hansard, 2 July 2012, pp. 56–57.

[47]      Dr Yvonne Luxford, Palliative Care Australia, Committee Hansard, 24 April 2012, p. 24.

[48]      Mr Martin Laverty, Chief Executive Officer, Catholic Health Australia, Committee Hansard, 2 July 2012, p. 37.

[49]      Associate Professor Deborah Parker, Director, University of Queensland/Blue Care Research and Practice Development Centre, Committee Hansard, 2 July 2012, p. 5.

[50]      Associate Professor Deborah Parker, Committee Hansard, 2 July 2012, p. 5.

[51]      Professor David Currow, Committee Hansard, 2 July 2012, p. 63.

[52]      Professor David Currow, Committee Hansard, 2 July 2012, p. 63.

[53]      Dr Yvonne Luxford, Palliative Care Australia, Committee Hansard, 24 April 2012, p. 19.

[54]      Productivity Commission, Caring for Older Australians, August 2011 http://www.pc.gov.au/projects/inquiry/aged-care/report (accessed 8 October 2012).

[55]      Dr Alan Rouse, Tasmanian Health Organisation—North West, Committee Hansard, 5 July 2012, p. 5.

[56]      Dr Peta McVey, Clinical Nurse Consultant, Palliative Care, HammondCare, Committee Hansard, 2 July 2012, p. 21.

[57]      Professor Rohan Vora, President, Palliative Care Queensland, Committee Hansard, 2 July 2012, p. 31.

[58]      Professor David Currow, Committee Hansard, 2 July 2012, pp. 67–68.

[59]      Professor David Currow, Committee Hansard, 2 July 2012, p. 68.

[60]      Mr Trevor Carr, Chief Executive, Victorian Healthcare Association, Committee Hansard, 4 July 2012, p. 13.

[61]      Mr Trevor Carr, Victorian Healthcare Association, Committee Hansard, 4 July 2012, p. 13.

[62]      Mr Trevor Carr, Victorian Healthcare Association, Committee Hansard, 4 July 2012, p. 15.

[63]      Ms Jenni Bourke, Senior Occupational Therapist, Representative, Occupational Therapy Oncology Group, Occupational Therapy Australia; Ms Rebekah Boffa, Acting Co-Convenor, Victorian Palliative Care Special Interest Group, Occupational Therapy Australia, Committee Hansard, 4 July 2012, p. 21.

[64]      Ms Susanne McKechnie, Executive Manager, Community Services, Resthaven Inc., Committee Hansard, 5 July 2012, p. 11.

[65]      Ms Susanne McKechnie, Resthaven Inc., Committee Hansard, 5 July 2012, p. 11.

[66]      Professor David Currow, Committee Hansard, 2 July 2012, p. 63.

[67]      Professor Rohan Vora, Palliative Care Queensland, Committee Hansard, 2 July 2012, p. 29.

[68]      Ms Jeanette Moody, Eastern Palliative Care Association Inc., Committee Hansard, 4 July 2012, p. 2.

[69]      Dr Leslie Bolitho AM, President, Royal Australasian College of Physicians, Committee Hansard, 2 July 2012, p. 9.

[70]      Dr Leslie Bolitho AM, Royal Australasian College of Physicians, Committee Hansard, 2 July 2012, p. 9.

Chapter 4 - State palliative care services

[1]        Council of Australian Governments, National Partnership Agreement on Transitioning Responsibilities for Aged Care and Disability Services, 1 January 2009, p. 2.

[2]        Council of Australian Governments, National Partnership Agreement on Transitioning Responsibilities for Aged Care and Disability Services, 1 January 2009, p. A1.

[3]        Council of Australian Governments, National Partnership Agreement on Transitioning Responsibilities for Aged Care and Disability Services, 1 January 2009, pp. A1–A2.

[4]        Professor Rohan Vora, President, Palliative Care Australia and President-Elect, Australasian Chapter of Palliative Medicine, Committee Hansard, 2 July 2012, p. 15.

[5]        Palliative Care Victoria, Submission 108, p. 1.

[6]        Palliative Care Victoria, Submission 108, p. 3.

[7]        Professor Rohan Vora, Australasian Chapter of Palliative Medicine, Committee Hansard, 2 July 2012, p. 15.

[8]        Professor Rohan Vora, Australasian Chapter of Palliative Medicine, Committee Hansard, 2 July 2012, p. 15.

[9]        Victorian Healthcare Association, Submission 57, p. 4.

[10]      Mr Mark Cockayne, General Manager, Health and Director, Hospice Care Service, Silver Chain, Committee Hansard, 5 July 2012, p. 32.

[11]      Aged and Community Services WA, Submission 66, p. 3.

[12]      Mr Mark Cockayne, General Manager, Health and Director, Hospice Care Service; Mr Stephen Carmody, Chief Operating Officer, Silver Chain, Committee Hansard, 5 July 2012, p. 38.

[13]      Palliative Care Queensland, Submission 130, p. 3.

[14]      Minister for Health, Queensland Health, Submission 35 (to Queensland Parliamentary inquiry into palliative care services and home and community care services in Queensland), 4 August 2012, p. 3.

[15]      Minister for Health, Queensland Health, Submission 35 (to Queensland Parliamentary inquiry into palliative care services and home and community care services in Queensland),  4 August 2012, p. 4

[16]      Minister for Health, Queensland Health, Submission 35 (to Queensland Parliamentary inquiry into palliative care services and home and community care services in Queensland), 4 August 2012, p. 4.

[17]      Professor Rohan Vora, Palliative Care Queensland, Committee Hansard, 2 July 2012, pp. 30–31.

[18]      Professor Rohan Vora, Palliative Care Queensland, Committee Hansard, 2 July 2012, pp. 30–31.

[19]      Mr John-Paul Kristensen, Chief Executive Officer, Palliative Care Queensland, Committee Hansard, 2 July 2012, pp. 30–31.

[20]      Mr John-Paul Kristensen, Palliative Care Queensland, Committee Hansard, 2 July 2012, pp. 30–31.

[21]      Mrs Marie Robinson, Community Care Adviser, Blue Care, Committee Hansard, 2 July 2012, pp. 1–2.

[22]      South Australian Government, Submission 27, p. 5.

[23]      Ms Kate Swetenham, SA Health, Committee Hansard, 5 July 2012, p. 22.

[24]      Palliative Care Queensland, Submission 130, p. 3.

[25]      Mr Mark Cockayne, Silver Chain, Committee Hansard, 5 July 2012, p. 38.

[26]      Professor Rohan Vora, Australasian Chapter of Palliative Medicine, Committee Hansard, 2 July 2012, p. 15.

[27]      Ms Susanne McKechnie, Executive Manager, Community Services, Resthaven Inc., Committee Hansard, 5 July 2012, pp. 9–10.

[28]      Ms Susanne McKechnie, Resthaven Inc., Committee Hansard, 5 July 2012, p. 10.

[29]      Ms Susanne McKechnie, Resthaven Inc., Committee Hansard, 5 July 2012, pp. 9–10.

[30]      New South Wales Health, Submission 71, p. 2.

[31]      NSW Health, Submission 71, p. 2.

[32]      New South Wales Health, Submission 71, p. 1.

[33]      HammondCare, Submission 41, p. 3.

[34]      HammondCare, Submission 41, p. 3.

[35]      HammondCare, Submission 41, p. 3.

[36]      Bega Valley Community Health Service, Submission 120, p. 1.

[37]      Bega Valley Community Health Service, Submission 120, pp. 4–5.

[38]      Bega Valley Community Health Service, Submission 120, pp. 4–5.

[39]      Bega Valley Community Health Service, Submission 120, pp. 4–5.

[40]      Hunter New England Local Health District Palliative Care Clinical Stream, Submission  6, p. 3.

[41]      Tasmanian Department of Health and Human Services, Submission 22, p. 3.

[42]      Tasmanian Department of Health and Human Services, Submission 22, p. 8.

[43]      Tasmanian Association for Hospice and Palliative Care Inc., Submission 116, pp. 2–3.

                                   Chapter 5 - Carers

[1]        Palliative Care Australia, Submission 98, p. 139.

[2]        Ms Jeanette Moody, Chief Executive Officer, Eastern Palliative Care Association Inc., Committee Hansard, 4 July 2012, p. 1.

[3]        Mr Trevor Carr, Chief Executive, Victorian Healthcare Association, Committee Hansard, 4 July 2012, p. 14.

[4]        Ms Jeanette Moody, Eastern Palliative Care Association Inc., Committee Hansard, 4 July 2012, p. 1.

[5]        Ms Brynnie Goodwill, Chief Executive Officer, LifeCircle Australia Ltd, Committee Hansard, 24 April 2012, p. 53.

[6]        Ms Jeanette Moody, Eastern Palliative Care Association Inc., Committee Hansard, 4 July 2012, p. 1.

[7]        Professor David Currow, Professor of Palliative and Supportive Services, Flinders University, Committee Hansard, 2 July 2012, p. 64.

[8]        Professor David Currow, Committee Hansard, 2 July 2012, p. 64.

[9]        Professor David Currow, Committee Hansard, 2 July 2012, p. 64.

[10]      Senator Dean Smith, Senator Sue Boyce and Professor David Currow, Committee Hansard, 2 July 2012, p. 70.

[11]      Professor Katherine Clark, Catholic Health Australia, Committee Hansard, 2 July 2012, p. 35.

[12]      Cancer Council NSW and LifeCircle, Submission 83, p. 5.

[13]      Associate Professor Rohan Vora, President, Palliative Care Queensland, Committee Hansard, 2 July 2012, p. 30.

[14]      Carers NSW, Submission 61, p. 2.

[15]      Commonwealth of Australia, National Carer Strategy, p. 13 http://www.fahcsia.gov.au/sites/default/files/documents/06_2012/national_carer_strategy.pdf  (accessed 20 September 2012).

[16]      The Hon Jenny Macklin MP, Minister for Families, Housing, Community Services and Indigenous Affairs, Senator Jan McLucas, Parliamentary Secretary for Disabilities and Carers, the Hon Nicola Roxon MP, Minister for Health and Ageing, 'National Carer Strategy launch', media release, 3 August 2011 http://www.jennymacklin.fahcsia.gov.au/node/1198 (accessed 20 September 2012). 

[17]      The Hon Jenny Macklin MP, Minister for Families, Housing, Community Services and Indigenous Affairs, Senator Jan McLucas, Parliamentary Secretary for Disabilities and Carers, the Hon Nicola Roxon MP, Minister for Health and Ageing, 'National Carer Strategy launch', media release, 3 August 2011 http://www.jennymacklin.fahcsia.gov.au/node/1198 (accessed 20 September 2012). 

[18]      See Living Longer, Living Better – Aged Care Reform Package, Department of Health and Ageing, April 2012 http://www.health.gov.au/internet/publications/publishing.nsf/Content/ageing-aged-care-reform-measures-toc~ageing-aged-care-reform-measures-chapter4.htm  (accessed 12 September 2012).

[19]      Palliative Care Victoria, Submission 108, p. 7.

[20]      Palliative Care Australia, Submission 98, p. 139.

[21]      Associate Professor Rohan Vora, President, Palliative Care Queensland, Committee Hansard, 2 July 2012, p. 25.

[22]      See for example Mrs Marie Robinson, Committee Hansard, 2 July 2012, p. 1.

[23]      Ms Jeanette Moody, Eastern Palliative Care Association Inc., Committee Hansard, 4 July 2012, pp. 2–3.

[24]      Ms Jeanette Moody, Eastern Palliative Care Association Inc., Committee Hansard, 4 July 2012, p. 6.

[25]      Professor Jane Phillips, Professor of Palliative Nursing, University of Notre Dame and St Vincent's Sacred Heart, Sydney, Committee Hansard, 2 July 2012, p. 60.

[26]      Mr Gary Coleman and Senator Claire Moore, Committee Hansard, 4 July 2012, p. 44.

[27]      Ms Christine Pedley, Manager, Allied Health, Eastern Palliative Care Association Inc., Committee Hansard, 4 July 2012, p. 9.

[28]      See National Respite for Carers Program http://www.health.gov.au/internet/main/publishing.nsf/content/ageing-carers-nrcp.htm (accessed 20 September 2012).

[29]      Carers NSW, Submission 61, p. 3.

[30]      Dr Jenny Hynson, Australia and New Zealand Paediatric Palliative Care Reference Group, Committee Hansard, 4 July 2012, p. 27.

[31]      Mrs Fiona Engwirda and Mr John-Paul Kristensen, Palliative Care Queensland, Committee Hansard, 2 July 2012, p. 26.

[32]      Mr Richard Burnet, Committee Hansard, 4 July 2012, p. 38. 

[33]      Mr Richard Burnet, Committee Hansard, 4 July 2012, p. 35.

[34]      Cancer Council NSW and LifeCircle, Submission 83; Amaranth Foundation, Submission 105.; Carers NSW, Submission 61.

[35]      LifeCircle, Our partners http://www.lifecircle.org.au/about-us/our-partners (accessed 8 October 2012).

[36]      Amaranth Foundation, Home http://www.amaranth.org.au/ (accessed 8 October 2012).

[37]      Amaranth Foundation, Submission 105, p. 2.

[38]      Ms Gillian Batt, Director, Cancer Information and Support Services, Cancer Council NSW, and Director, LifeCircle Australia Ltd, Committee Hansard, 24 April 2012, p. 50.

[39]      Cancer Council NSW and LifeCircle, Submission 83, pp. 5–6.

[40]      The Eastern Palliative Care Association also provides support to the carer for 13 months after the death of the patient. See Ms Jeanette Moody, Committee Hansard, 4 July 2012, p. 2.

[41]      Ms Brynnie Goodwill, LifeCircle Australia Ltd, Committee Hansard, 24 April 2012, p. 55.

[42]      Ms Brynnie Goodwill, LifeCircle Australia Ltd, Committee Hansard, 24 April 2012, pp. 53–54.

[43]      Ms Brynnie Goodwill, LifeCircle Australia Ltd, Committee Hansard, 24 April 2012, p. 53.

[44]      Mrs Oxana Paschuk-Johnson, Committee Hansard, 24 April 2012, p. 52.

[45]      Mr Gregory Santamaria, Director, Amaranth Foundation, Committee Hansard, 10 July 2012, p. 33.

[46]      Mr Gregory Santamaria, Amaranth Foundation, Committee Hansard, 10 July 2012, p. 33.

[47]      Mrs Julianne Whyte, Chief Executive Officer, Amaranth Foundation, Committee Hansard, 10 July 2012, p. 35.

[48]      Mrs Julianne Whyte,  Amaranth Foundation, Committee Hansard, 10 July 2012, p. 35.

[49]      Commonwealth of Australia, National Carer Strategy, p. 20 http://www.fahcsia.gov.au/sites/default/files/documents/06_2012/national_carer_strategy.pdf  (accessed 20 September 2012).

[50]      See CareSearch, CareSearch palliative care knowledge network http://www.caresearch.com.au/Caresearch/Default.aspx (accessed 20 September 2012).

[51]      Department of Health and Ageing, 'The Australian Palliative Care Knowledge Network, CareSearch' http://www.health.gov.au/internet/main/publishing.nsf/Content/palliativecare-factsheet-caresearch-apckn, (accessed 20 September 2012). 

[52]      Palliative Care Outcomes Collaboration, Submission 111, p. 13.

[53]      See National Carer Counselling Program http://www.health.gov.au/internet/main/publishing.nsf/content/ageing-carers-nrcp.htm (accessed 20 September 2012).

[54]      Kim McCartney, Committee Hansard, 4 July 2012, p. 39.

[55]      Cancer Council NSW and LifeCircle, Submission 83, p. 7.

[56]      Cancer Council NSW and LifeCircle, Submission 83, p. 7.

[57]      Cancer Council NSW and LifeCircle, Submission 83, p. 7.

[58]      Mr Richard Burnet, Committee Hansard, 4 July 2012, p. 36.

[59]      See Carer Allowance http://www.humanservices.gov.au/customer/services/centrelink/carer-allowance (accessed 10 September 2012).

[60]      See Eligibility for Carer Allowance http://www.humanservices.gov.au/customer/enablers/centrelink/carer-allowance/eligibility (accessed 20 September 2012).

[61]      See Eligibility for Carer Allowance http://www.humanservices.gov.au/customer/enablers/centrelink/carer-allowance/eligibility (accessed 20 September 2012).  Note: the list of recognised disabilities is available at: http://www.fahcsia.gov.au/our-responsibilities/disability-and-carers/benefits-payments/carer-allowance/guide-to-the-revised-lists-of-recognised-disabilities.

[62]      See Payment Rates for Carer Allowance http://www.humanservices.gov.au/customer/enablers/centrelink/carer-allowance/payment-rates (accessed 20 September 2012).

[63]      Professor David Currow, Committee Hansard, 2 July 2012, p. 68.

[64]      Mr Richard Burnet, Senator Rachel Siewert and Senator Sue Boyce, Committee Hansard, 4 July 2012, p. 39.

[65]      Department of Human Services, Carer Payment http://www.humanservices.gov.au/customer/services/centrelink/carer-payment (accessed 3 October 2012).

[66]      Department of Human Services,  Carer Payment http://www.humanservices.gov.au/customer/services/centrelink/carer-payment (accessed 3 October 2012).

[67]      The Child Care Rebate is not income-tested and it pays up to 50 per cent of out-of-pocket expenses for child care up to an annual cap. For the 2012-13 income year, the Child Care Rebate annual cap is $7,500 per child per year. See Child Care Rebate http://www.mychild.gov.au/childcarerebate/default.aspx (accessed 20 September 2012).

[68]      Dr Yvonne Luxford, Chief Executive Officer, Palliative Care Australia, Committee Hansard, 24 April 2012, p. 25.

[69]      Palliative Care Australia, Submission 98, p. 17.

[70]      Palliative Care Australia, Submission 98, p. 82.

[71]      Palliative Care Australia, Submission 98, p. 82.

[72]      Eastern Palliative Care Association, Submission 42, p. 4. See also Ms Jeanette Moody, Committee Hansard, 4 July 2012, p. 8.

[73]      Associate Professor Rohan Vora, Palliative Care Queensland and Senator Sue Boyce, Committee Hansard, 2 July 2012, p. 29.

Chapter 6 - The professional workforce and its development

[1]        Victorian Healthcare Association, Submission 57, p. 5.

[2]        Ms Wendy Porter, Residential Care Manager, Western Australia, for Aged and Community Services Australia, Committee Hansard, 10 July 2012, p. 19.

[3]        Ms Angela Raguz, General Manager, Residential Care for HammondCare, Committee Hansard, 2 July 2012, p. 21.

[4]        Professor Patsy Yates, President Elect of Palliative Care Australia, Committee Hansard, 10 July 2012, p. 12.

[5]        Mr Trevor Carr, Chief Executive of the Victorian Healthcare Association, Committee Hansard, 4 July 2012, p. 14.

[6]        See Australian Nursing Federation, Submission 85, p. 11.

[7]        Australian Nursing Federation, Submission 85, pp. 11–12.

[8]        Pharmacy Guild of Australia, Submission 51, p. 9.

[9]        Mr Trevor Carr, Victorian Healthcare Association, Committee Hansard, 4 July 2012, p. 11.

[10]      Nurse practitioners are registered nurses educated to a master's degree level.

[11]      Mr Trevor Carr, Victorian Healthcare Association, Committee Hansard, 4 July 2012, p. 11.

[12]      Associate Professor Rohan Vora, President-Elect, Australasian Chapter of Palliative Medicine, Committee Hansard, 2 July 2012, p. 16, suggested around 200, and indicated that Health Workforce Australia had made a lower estimate of 162.

[13]      Associate Professor Rohan Vora, Australasian Chapter of Palliative Medicine, Committee Hansard, 2 July 2012, p. 16.

[14]      Royal Australian College of Physicians, Submission 29, p. 7.

[15]      Palliative Care Australia, Submission 98, p. 19.

[16]      Dr Leslie Bolitho AM, President, Royal Australasian College of Physicians, Committee Hansard, 2 July 2012, p. 10.

[17]      Dr Yvonne McMaster, Committee Hansard, 24 April 2012, p. 70.

[18]      Dr Yvonne McMaster, Committee Hansard, 24 April 2012, p. 73.  See also Mr Peter Cleasby, Committee Hansard, 2 July 2012, p, 51.

[19]      Associate Professor Mark Boughey, Co-Deputy Director, Centre for Palliative Care, Committee Hansard, 4 July 2012, p. 54.

[20]      Associate Professor Mark Boughey, Centre for Palliative Care, Committee Hansard, 4 July 2012, p. 55.

[21]      Dr Jenny Hynson, Australia and New Zealand Paediatric Palliative Care Reference Group, Committee Hansard, 4 July 2012, p. 33.

[22]      Professor Jane Phillips, Professor of Palliative Nursing, University of Notre Dame and St Vincent's Sacred Heart, Sydney, Committee Hansard, 2 July 2012, p. 59.

[23]      Ms Angela Raguz, HammondCare, Committee Hansard, 2 July 2012, p. 21.  See also Palliative Care Nurses Australia, Submission 45, p. 5.

[24]      Ms Julianne Bryce, Senior Federal Professional Officer, Australian Nursing Federation, Committee Hansard, 24 April 2012, p. 37.

[25]      Ms Catherine Pigott, Member, Australian Nursing Federation, Committee Hansard, 24 April 2012, p. 37.

[26]      Ms Julianne Bryce, Australian Nursing Federation, Committee Hansard, 24 April 2012, p. 39.

[27]      Ms Catherine Pigott, Ms Julianne Bryce, Ms Robyn Coulthard, Member, Australian Nursing Federation, Senator Claire Moore, Committee Hansard, 24 April 2012, p. 36.

[28]      Ms Deirdre Morgan, Senior Occupational Therapist, Palliative Care, Peninsula Health, Victorian Palliative Care Special Interest Group, Occupational Therapy Australia, Committee Hansard, 4 July 2012, p. 17.

[29]      Occupational Therapy Australia, Victoria Division Oncology and Palliative Care Services in Australia, Submission 59, p. 2.

[30]      Ms Deirdre Morgan, Victorian Palliative Care Special Interest Group, Occupational Therapy Australia, Committee Hansard, 4 July 2012, p. 17.

[31]      Occupational Therapy Australia, Victoria Division Oncology and Palliative Care Services in Australia, Submission 59, pp. 4–5.

[32]      Dr Yvonne McMaster, Committee Hansard, 24 April 2012, p. 73.

[33]      Professor Katherine Clark, Catholic Health Australia, Committee Hansard, 2 July 2012, p. 35.

[34]      Mr Peter Cleasby, President, Palliative Care New South Wales, Committee Hansard, 2 July 2012, p. 49.

[35]      Dr Yvonne McMaster, Committee Hansard, 24 April 2012, p. 70.

[36]      Ms Angela Raguz, HammondCare, Committee Hansard, 2 July 2012, p. 21.

[37]      Dr Yvonne McMaster, Committee Hansard, 24 April 2012, p. 71. To meet the psychological, social and clinical needs of people who need palliative care in rural areas, Dr McMaster advocated for more social workers and case coordinators.

[38]      Australian Nursing Federation, Submission 85, p. 3.

[39]      South Australian Government, Submission 27, p. 6.

[40]      Associate Professor Deborah Parker, Director, University of Queensland/Blue Care Research and Practice Development Centre, Blue Care, Committee Hansard, 2 July 2012, pp. 2–3.  See http://www.uq.edu.au/bluecare/comprehensive-evidence-based-strategy-to-address-the-palliative-care-needs-of-people-residing-in-residential-aged-care-facilities-racfs-cebparac (accessed 12 September 2012).  Associate Professor Parker also informed the committee of a palliative approach educational toolkit, funded by the Department of Health and Ageing.

[41]      Professor Patsy Yates, President Elect, Palliative Care Australia, Committee Hansard, 10 July 2012, p. 12.

[42]      Mr Nicolas Mersiades, Senior Aged Care Adviser, Aged and Community Services Australia, Committee Hansard, 10 July 2012, p. 20.

[43]      Mr John Haberecht, President, Palliative Care Nurses Australia, Committee Hansard, 24 April 2012, p. 58.

[44]      Department of Health and Ageing, answers to questions on notice (question 5), received 23 May 2012.

[45]      Department of Health and Ageing, answers to questions on notice (question 5), received 23 May 2012.

[46]      Department of Health and Ageing, answers to questions on notice (question 5), received 23 May 2012.

[47]      See Living Longer. Living Better – Aged Care Reform Package, Department of Health and Ageing, April 2012 http://www.health.gov.au/internet/publications/publishing.nsf/Content/ageing-aged-care-reform-measures-toc~ageing-aged-care-reform-measures-chapter6.htm (accessed 12 September 2012).

[48]      Australian and New Zealand Society of Palliative Medicine, Submission 33, pp. 13–14. See also Dr Yvonne McMaster, Committee Hansard, 24 April 2012, p. 70.

[49]      Australian and New Zealand Society of Palliative Medicine, Submission 33, pp. 13–14.

[50]      Ms Wendy Porter, Residential Care Manager, Western Australia, Aged and Community Services Australia, Committee Hansard, 10 July 2012, p. 19.

[51]      Mr Rod Wellington, Chief Executive Officer, Services for Australian Rural and Remote Allied Health, Committee Hansard, 24 April 2012, p. 30.

[52]      Ms Catherine Pigott, Australian Nursing Federation, Committee Hansard, 24 April 2012, p. 35.

[53]      Professor Jane Phillips, Committee Hansard, 2 July 2012, p. 59.

[54]      Ms Catherine Pigott, Australian Nursing Federation, Committee Hansard, 24 April 2012, p. 35.  

[55]      Mr Jason Mills, National Committee Secretary, Palliative Care Nurses Australia, Committee Hansard, 24 April 2012, p. 59.

[56]      Mr Jason Mills, Palliative Care Nurses Australia, Committee Hansard, 24 April 2012, p. 60.

[57]      Mr Jason Mills, Palliative Care Nurses Australia, Committee Hansard, 24 April 2012, p. 59.

[58]      Mr Jason Mills, Palliative Care Nurses Australia, Committee Hansard, 24 April 2012, p. 60.

[59]      Palliative Care Nurses Australia, Submission 45, p. 8.

[60]      Mr John Haberecht, Palliative Care Nurses Australia, Committee Hansard, 24 April 2012, p. 59.  See Palliative Care Nurses Australia, Submission 45, p. 8.

[61]      Ms Elizabeth Foley, Australian Nursing Federation, Committee Hansard, 24 April 2012, p. 36.

[62]      Ms Geri Malone, Australian Nursing Federation, Committee Hansard, 24 April 2012, p. 36.

[63]      Dr Yvonne McMaster, Committee Hansard, 24 April 2012, p. 71.

[64]      Dr Ron Sinclair, Consumer, Alzheimer's Australia, Committee Hansard, 24 April 2012, p. 2.

[65]      Associate Professor Frances Boyle AM, Former Executive, Medical Oncology Group of Australia, Committee Hansard, 2 July 2012, p. 46.

[66]      See for example Dr Yvonne Luxford, Committee Hansard, 24 April 2012, p. 18.

[67]      Dr Yvonne Luxford, Palliative Care Australia, Committee Hansard, 24 April 2012, p. 21.

[68]      Palliative Care Curriculum for Undergraduates, www.pcc4u.org, (accessed 28 September 2012).

[69]      Dr Yvonne Luxford, Palliative Care Australia, Committee Hansard, 24 April 2012, p. 21.

[70]      Professor Jane Phillips, Committee Hansard, 2 July 2012, p. 59.

[71]      See Welcome to PEPA, www.pepaeducation.com (accessed 10 October 2012)

[72]      Mr John Haberecht, Palliative Care Nurses Australia, Committee Hansard, 24 April 2012, p. 58.

[73]      Dr Yvonne Luxford, Palliative Care Australia, Committee Hansard, 24 April 2012, p. 23.

[74]      Mr John Haberecht, Palliative Care Nurses Australia, Committee Hansard, 24 April 2012, p. 58.

[75]      Associate Professor Jennifer Philip, Catholic Health Australia, Committee Hansard, 4 July 2012, p. 54.

[76]      Dr Yvonne McMaster, Committee Hansard, 24 April 2012, p. 70.

[77]      Associate Professor Andrew Cole, Chief Medical Officer, HammondCare, Committee Hansard, 2 July 2012, p. 17.

[78]      Associate Professor Mark Boughey, Centre for Palliative Care, and Senator Concetta Fierravanti-Wells, Committee Hansard, 4 July 2012, p. 54.

[79]      Associate Professor Mark Boughey, Centre for Palliative Care, Committee Hansard, 4 July 2012, p. 55.

[80]      Associate Professor Mark Boughey, Centre for Palliative Care, Committee Hansard, 4 July 2012, p. 55.

[81]      Associate Professor Mark Boughey, Centre for Palliative Care, Committee Hansard, 4 July 2012, pp. 55–6. 

Chapter 7 Models of service delivery

[1]        Silver Chain, a Western Australian based not-for-profit organisation that has been providing care to people living in metropolitan, rural and remote areas for over 100 years is one of Australia's largest providers of community, clinical and health care services to the Western Australian and South Australian communities, and a growing entity in Queensland. Silver Chain provides a diverse range of services including palliative care and through its Hospice Care Service in Western Australia provides specialist community palliative care services Source: Silver Chain, Submission 80, p. 2.

[2]        Silver Chain, Submission 80, p. 2.

[3]        Silver Chain, Submission 80, p. 8.

[4]        Silver Chain, Submission 80, p. 2.

[5]        Silver Chain, Submission 80, pp. 8–9.

[6]        Silver Chain, Submission 80, p. 2.

[7]        Dr Yvonne McMaster, Submission 92, p. 22.

[8]        Dr Yvonne McMaster, Submission 92, pp. 22–23.

[9]        Ms Angela Raguz, General Manager, Residential Care, HammondCare, Committee Hansard, 2 July 2012, p. 18.

[10]      Ms Angela Raguz, HammondCare, Committee Hansard, 2 July 2012, p. 18.    

[11]      Ms Angela Raguz, HammondCare, Committee Hansard, 2 July 2012, p. 22.

[12]      Ms Angela Raguz, HammondCare, Committee Hansard, 2 July 2012, p. 22.

[13]      Ms Angela Raguz, HammondCare, Committee Hansard, 2 July 2012, pp. 22–23.

[14]      Eastern Palliative Care Association Inc., Submission 42, p. 1.

[15]      Eastern Palliative Care Association Inc., Submission 42, p. 1.

[16]      Ms Jeanette Moody, Chief Executive Officer, Eastern Palliative Care Association Inc., Committee Hansard, 4 July 2012, p. 5.

[17]      Ms Jeanette Moody, Eastern Palliative Care Association Inc., Committee Hansard, 4 July 2012, p. 5.

[18]      Ms Jeanette Moody, Eastern Palliative Care Association Inc., Committee Hansard, 4 July 2012, p. 5. 

[19]      Eastern Palliative Care Association Inc., Committee Hansard, 4 July 2012, p. 5.

[20]      Ms Louise Hogan, Manager Human Resources and Public Relations; Ms Jeanette Moody, Chief Executive Officer, Eastern Palliative Care Association Inc., Committee Hansard, 4 July 2012, p. 8.

[21]      Dr Yvonne Luxford, Chief Executive Officer, Palliative Care Australia, Committee Hansard, 24 April 2012, p. 25.

[22]      Professor Rohan Vora, President, Palliative Care Queensland, Committee Hansard, 2 July 2012, p. 28.          

[23]      Mr Trevor Carr, Chief Executive, Victorian Healthcare Association, Committee Hansard, 4 July 2012, pp. 15–16.

[24]      Mr Mark Cockayne, General Manager, Health; and Director, Hospice Care Service, Silver Chain, Committee Hansard, 5 July 2012, p. 32.

[25]      Professor Rohan Vora, Palliative Care Queensland, Committee Hansard, 2 July 2012, p. 24.

[26]      Anam Cara House Geelong and Colac, Submission 54, p. 2.

[27]      Victorian Healthcare Association, Submission 57, p. 1.

Chapter 8 - Case management

[1]        Mr Rod Wellington, Chief Executive Officer, Services for Australian Rural and Remote Allied Health, Committee Hansard, 24 April 2012, p.  29.

[2]        Professor Katherine Clark, Catholic Health Australia, Committee Hansard, 2 July 2012, p. 39.

[3]        Association Professor Frances Boyle AM, Former Executive, Medical Oncology Group of Australia, Committee Hansard, 2 July 2012, p. 41.

[4]        Professor Jane Phillips, Professor of Palliative Nursing, University of Notre Dame and St Vincent's Sacred Heart, Committee Hansard, 2 July 2012, p. 58.

[5]        Mrs Fiona Engwirda, Committee Hansard, 2 July 2012, p. 24.

[6]        Dr Jenny Hynson, Australia and New Zealand Paediatric Palliative Care Reference Group, Committee Hansard, 4 July 2012, p. 27.

[7]        Ms Geri Malone, Australian Nursing Federation, Committee Hansard, 24 April pp. 42–43.

[8]        Dr Yvonne McMaster, Committee Hansard, 24 April 2012, pp. 71–72.

[9]        Ms Kerry Snell, Consumer Representative Program Coordinator; Dr Adele Stevens, President, Health Care Consumers Association ACT, Committee Hansard, 24 April 2012, p. 49.

[10]       Dr Ken Baker, Chief Executive Officer, National Disability Services, Committee Hansard, 24 April 2012, p. 68.

[11]       Mr Rod Wellington; Mr Michael Bishop, Life Member, Services for Australian Rural and Remote Allied Health, Committee Hansard, 24 April 2012, p. 34.

[12]       Dr Yvonne Luxford, Chief Executive Officer; Dr Ian White, National Policy and Communications Manager, Palliative Care Australia, Committee Hansard, 24 April 2012, p. 20.

[13]       Mr Martin Laverty, Catholic Health Australia, Committee Hansard, 2 July 2012, p. 36.

[14]       Mr John Haberecht, Palliative Care Nurses Australia, Committee Hansard, 24 April 2012, p. 61.

[15]       Mr John Haberecht, Palliative Care Nurses Australia, Committee Hansard, 24 April 2012, p. 62.

[16]      Mr John Haberecht, Palliative Care Nurses Australia, Committee Hansard, 24 April 2012, p. 61.

[17]       Professor Jane Phillips, Professor of Palliative Nursing, University of Notre Dame and St Vincent's Sacred Heart, Committee Hansard, 2 July 2012, pp. 60–61

[18]       Professor Jane Phillips, Committee Hansard, 2 July 2012, pp. 60–61.

[19]       Mrs Julianne Whyte, Chief Executive Officer, Amaranth Foundation, Committee Hansard, 10 July 2012, p. 28.

[20]       Ms Kate Swetenham, SA Health, Committee Hansard, 5 July 2012, p. 23.

[21]       Ms Kate Swetenham, SA Health, Committee Hansard, 5 July 2012, p. 23.

[22]       Ms Kate Swetenham, SA Health, Committee Hansard, 5 July 2012, p. 23.

Chapter 9 - Research and data

[1]        For example see Dr Yvonne Luxford, Chief Executive Officer, Palliative Care Australia, Committee Hansard, 24 April 2012, p. 18.

[2]        Clinical Oncology Society of Australia and Cancer Voices Australia, Submission 101, p. 2.

[3]        Associate Professor Jennifer Philip, Co-Deputy Director, Centre for Palliative Care, Committee Hansard, 4 July 2012, p. 52.

[4]        Discussed further at the end of this chapter. 

[5]        Professor Jennifer Philip, Centre for Palliative Care, Committee Hansard, 4 July 2012, p. 53.

[6]        Professor Jennifer Philip, Centre for Palliative Care, Committee Hansard, 4 July 2012, p. 56.

[7]        Professor Patsy Yates, President Elect, Palliative Care Australia, Committee Hansard, 10 July 2012, p. 12.

[8]        Professor Patsy Yates, Palliative Care Australia, Committee Hansard, 10 July 2012, p. 12.

[9]        Associate Professor Mark Boughey, Co-Deputy Director, Centre for Palliative Care, Committee Hansard, 4 July 2012, p. 52.

[10]      Centre for Palliative Care, Submission 110, p. 1.

[11]      Mrs Julianne Whyte, Chief Executive Officer, Amaranth Foundation, Committee Hansard, 12 July 2012, p. 35.

[12]      Mrs Julianne Whyte, Amaranth Foundation, Committee Hansard, 10 July 2012, p. 27.

[13]      Mrs Julianne Whyte, Amaranth Foundation, Committee Hansard, 12 July 2012, p. 27.

[14]      Mr Harvey Cuthill, National Councillor, Pharmacy Guild of Australia, Committee Hansard, 10 July 2012, p. 4.

[15]      Professor Jennifer Philip, Committee Hansard, 4 July 2012, p. 53.

[16]      Dr Jenny Hynson, Australia and New Zealand Paediatric Palliative Care Reference Group, and Senator Dean Smith, Committee Hansard, 4 July 2012, p. 30.

[17]      Professor Jennifer Philip, Committee Hansard, 4 July 2012, p. 54.

[18]      Professor David Currow, Professor of Palliative and Supportive Services, Flinders University, Committee Hansard, 2 July 2012, p. 66.

[19]      Professor Jennifer Philip, Committee Hansard, 4 July 2012, p. 54.

[20]      Dr Jenny Hynson, Australia and New Zealand Paediatric Palliative Care Reference Group, Committee Hansard, 4 July 2012, p. 30.

[21]      Mrs Fiona Engwirda, Committee Hansard, 2 July 2012, p. 28.

[22]      Professor Jennifer Philip, Committee Hansard, 4 July 2012, p. 53. See also Centre for Palliative Care, Submission 110, p. 2.

[23]      Associate Professor Frances Boyle AM, Former Executive, Medical Oncology Group of Australia, Committee Hansard, 2 July 2012, p. 42.

[24]      Ms Kate Swetenham, SA Health, Committee Hansard, 5 July 2012, p. 25.

[25]      Professor Jennifer Philip, Committee Hansard, 4 July 2012, pp. 52–3.

[26]      Professor Jennifer Philip, Committee Hansard, 4 July 2012, p. 53.

[27]      Clinical Oncology Society of Australia and Cancer Voices Australia, Submission 101, p. 2.

[28]      Professor Jennifer Philip, Committee Hansard, 4 July 2012, p. 52.

[29]      Professor Jennifer Philip, Committee Hansard, 4 July 2012, pp. 53–4.

[30]      Cancer Australia, Priority-driven research http://www.canceraustralia.gov.au/research-data/research/priority-driven-research (accessed 2 October 2012).

[31]      Cancer Australia, Research priorities for 2012 http://www.canceraustralia.gov.au/research-data/research/priority-driven-research/research-priorities-2012 (accessed 2 October 2012).

[32]      Ms Kate Swetenham, SA Health, Committee Hansard, 5 July 2012, p. 27.

[33]      Mr Peter Cleasby, President, Palliative Care New South Wales, Committee Hansard, 2 July 2012, p. 48.

[34]      Associate Professor Deborah Parker, Director, University of Queensland/Blue Care Research and Practice Development Centre, Blue Care, Committee Hansard, 2 July 2012, p. 4.

[35]      Mr Trevor Carr, Chief Executive, Victorian Healthcare Association, Committee Hansard, 4 July 2012, p. 11.

[36]      Clinical Oncology Society of Australia and Cancer Voices Australia, Submission 101, p. 1.

[37]      Ms Alice Creelman, Assistant Secretary, Cancer and Palliative Care Branch, Department of Health and Ageing, Committee Hansard, 10 July 2012, p. 44. 

[38]      Professor David Currow, Committee Hansard, 2 July 2012, p. 63.

[39]      Ms Kate Swetenham, SA Health, Committee Hansard, 5 July 2012, p. 22.

[40]      Associate Professor Rohan Vora, Palliative Care Queensland, Committee Hansard, 2 July 2012, pp. 24–5. 

[41]      Palliative Care Outcomes Collaboration, Submission 111, p, 1.

[42]      Associate Professor Deborah Parker, Blue Care, Committee Hansard, 2 July 2012, p. 4.

[43]      Professor David Currow, Committee Hansard, 2 July 2012, p. 65.

[44]      Professor David Currow, Committee Hansard, 2 July 2012, p. 65.

[45]      Professor David Currow and Senator Claire Moore, Committee Hansard, 2 July 2012, p. 65.

[46]      Associate Professor Rohan Vora, Palliative Care Queensland, Committee Hansard, 2 July 2012, p. 32.

[47]      Associate Professor Rohan Vora, President-Elect, Australasian Chapter of Palliative Medicine, Committee Hansard, 2 July 2012, p. 10.

[48]      Strategic Review of Health and Medical Research in Australia, Terms of Reference, http://www.mckeonreview.org.au/9937/Terms_of_Reference/ (accessed 2 October 2012).

[49]      Centre for Palliative Care, Submission 110, p. 3.

[50]      Professor David Currow, Committee Hansard, 2 July 2012, p. 67.

[51]      The PaCCSC comprises Flinders University/Southern Adelaide Palliative Services, Sydney Cancer Centre, Sydney South West Area Palliative Care Service – Liverpool Palliative Care Services, WA Centre for Cancer and Palliative Care, Centre for Palliative Care Research and Education/Queensland University of Technology/Mater Health Service and the Peter MacCallum Cancer Institute. 

[52]      'Increased access to palliative medicines in the community', Department of Health and Ageing, http://www.health.gov.au/internet/main/publishing.nsf/Content/palliativecare-program-prio2 (accessed 14 September 2012). 

[53]      Professor David Currow, Committee Hansard, 2 July 2012, p. 67.

[54]      Professor David Currow, Committee Hansard, 2 July 2012, p. 66.

[55]      Associate Professor Frances Boyle AM, Medical Oncology Group of Australia, Committee Hansard, 2 July 2012, p. 44.

[56]      Ms Kay Francis, Executive Officer, Medical Oncology Group of Australia, and Senator Concetta Fierravanti-Wells, Committee Hansard, 2 July 2012, p. 44.

[57]      Associate Professor Frances Boyle AM, Medical Oncology Group of Australia, Committee Hansard, 2 July 2012, p. 44.

[58]      See 'Complementary medicines', National Health and Medical Research Council, http://www.nhmrc.gov.au/your-health/complementary-medicines (accessed 14 September 2012).

Chapter 10 - Accessing equipment

[1]        The HACC program, which was previously jointly funded by the federal and state and territory governments, became a federal government program from 1 July 2012.  HACC services can be accessed by people aged 65 years and over (or 50 and over for Aboriginal and Torres Strait Islander people), who are at risk of premature or inappropriate admission to long term residential care, and carers of older Australians eligible for services under the Commonwealth HACC Program. Source: http://www.health.gov.au/internet/main/publishing.nsf/Content/hacc-index.htm (accessed 26 September 2012).

[2]        Department of Health and Ageing, Commonwealth Home and Community Care (HACC) Program, http://www.health.gov.au/internet/main/publishing.nsf/Content/hacc-index.htm (accessed 28 September 2012).

[3]        Department of Health and Ageing, Commonwealth Home and Community Care (HACC) Program, http://www.health.gov.au/internet/main/publishing.nsf/Content/hacc-index.htm (accessed 28 September 2012).

[4]        Department of Health and Ageing, answers to questions on notice (question 7) received 23 May 2012.

[5]        State and Territory governments will continue to fund and administer basic community care services for people under 65 years and Aboriginal and Torres Strait Islander people aged under 50 years. This change in responsibility applies to all states and territories except Western Australia and Victoria who are not participating in the reforms to HACC. Basic community care services for frail older people and younger people with disability in Victoria and Western Australia will continue to be delivered under the Home and Community Care Program as a joint Commonwealth-State funded program, until otherwise agreed. Source: Department of Health and Ageing, answers to questions on notice (question 7) received 23 May 2012.

[6]        Department of Health and Ageing, answers to questions on notice (question 7) received 23 May 2012.

[7]        Mr Michael Bishop, Life Member, Services for Australian Rural and Remote Allied Health, Committee Hansard, 24 April 2012, pp. 32–33.

[8]        Ms Deidre Morgan, Senior Occupational Therapist, Palliative Care, Peninsula Health, Victorian Palliative Care Special Interest Group, Occupational Therapy Australia, Committee Hansard, 4 July 2012, p. 23.

[9]        Occupational Therapy Australia, Committee Hansard, 4 July 2012, p. 24.

[10]      Ms Deidre Morgan, Occupational Therapy Australia, Committee Hansard, 4 July 2012, p. 23.

[11]      Dr Jenny Hynson, Australia and New Zealand Paediatric Palliative Care Reference Group, Committee Hansard, 4 July 2012, p. 31.

[12]      Dr Jenny Hynson, Australia and New Zealand Paediatric Palliative Care Reference Group, Committee Hansard, 4 July 2012, p. 31.

[13]      Dr Jenny Hynson, Australia and New Zealand Paediatric Palliative Care Reference Group, Committee Hansard, 4 July 2012, p. 31.

[14]      Mr Michael Bishop, Services for Australian Rural and Remote Allied Health, Committee Hansard, 24 April 2012, pp. 32–33.

[15]      Dr Ken Baker, Chief Executive Officer, National Disability Service, Committee Hansard, 24 April 2012, p. 67.

[16]      Dr Ken Baker, National Disability Service, Committee Hansard, 24 April 2012, p. 67.

[17]      Ms Christine Pedley, Manager, Allied Health, Ms Jeanette Moody, Chief Executive Officer, Eastern Palliative Care Association Inc., Committee Hansard, 4 July 2012, pp. 6–7.

[18]      Ms Deidre Morgan, Occupational Therapy Australia, Committee Hansard, 4 July 2012, p. 22.

[19]      Ms Deidre Morgan, Occupational Therapy Australia, Committee Hansard, 4 July 2012, p. 22.

[20]      Mr Andrew Smith, Registered Occupational Therapist, Leukaemia Foundation, Victorian Palliative Care Special Interest Group, Occupational Therapy Australia, Committee Hansard, 4 July 2012, p. 22.

[21]      Professor Jane Phillips, Professor of Palliative Nursing, University of Notre Dame and St Vincent's Sacred Heart, Committee Hansard, 2 July 2012, p. 60.

[22]      Professor Jane Phillips, Committee Hansard, 2 July 2012, p. 60.

[23]      Ms Rachel Balmanno, Acting First Assistant Commissioner, Ageing and Aged Care Division, Department of Health and Ageing, Committee Hansard, p. 39.

[24]      Ms Deidre Morgan, Occupational Therapy Australia, Committee Hansard, 4 July 2012, p. 24.

[25]      Mr Andrew Smith, Occupational Therapy Australia, Committee Hansard, 4 July 2012, p. 24.

[26]      Ms Deidre Morgan, Occupational Therapy Australia,  Committee Hansard, 4 July 2012, p. 24.

[27]      Mr Andrew Smith, Occupational Therapy Australia, Committee Hansard, 4 July 2012, p. 24.

[28]      Mr Andrew Smith, Occupational Therapy Australia, Committee Hansard, 4 July 2012, p. 24.

Chapter 11 - Palliative care for special needs groups

[1]        Carers NSW, Submission 61, pp. 5–6. 

[2]        Ms Sarah Brown, Chief Executive Officer of Western Desert Aboriginal Corporation and Manager of the Purple House, Committee Hansard, 25 July 2012, pp. 11–12.

[3]        Australian Nursing Federation, Submission 85, pp. 5–6. 

[4]        KinCare, Submission 25, p. 5. 

[5]        Carers NSW, Submission 61, p. 5. 

[6]        See for example Carers NSW, Submission 61, pp. 5–6; Palliative Care Australia (PCA), Submission 98, p. 13; Australian General Practice Network (AGPN), Submission 107, pp. 9–10; Australian and New Zealand Society of Palliative Medicine (ANZSPM), Submission 33, pp. 8–9; Mercy Health, Submission 58, p. 4; BlueCare, Submission 28, p. 15. 

[7]        Carers NSW, Submission 61, pp. 5–6. 

[8]        Palliative Care Australia, Submission 98, pp. 13–15. 

[9]        Department of Health and Ageing, Department of Health and Ageing (DoHA) and Department of Education, Employment and Workplace Relations (DEEWR) - Aboriginal and Torres Strait Islander Health Workforce Projects http://www.health.gov.au/internet/main/publishing.nsf/Content/work-atsihwp (accessed 3 October 2012).

[10]      Palliative Care Australia, Submission 98, pp. 13–15. 

[11]      Australian General Practice Network, Submission 107, pp. 9–10.

[12]      KinCare, Submission 25, p. 5. 

[13]      Carers NSW, Submission 61, pp. 5–6. 

[14]      Ms Geri Malone, National Professional Officer, CRANAplus, Australian Nursing Federation, Committee Hansard, 24 April 2012, pp. 38–39.

[15]      Ms Sarah Brown, Chief Executive Officer, Western Desert Aboriginal Corporation, and Manager, Purple House, Committee Hansard, 25 July 2012, p. 11.

[16]      Ms Sarah Brown, Western Desert Aboriginal Corporation, and Manager, Purple House, Committee Hansard, 25 July 2012, p. 14.

[17]      Ms Cherie Waight, Victorian Aboriginal Care Project Coordinator, Victorian Aboriginal Community Controlled Health Organisation, Committee Hansard, 4 July 2012, p. 45. 

[18]      Ms Cherie Waight, Victorian Aboriginal Care Project Coordinator, Victorian Aboriginal Community Controlled Health Organisation, Committee Hansard, 4 July 2012, pp. 46–47. 

[19]      Dr Yvonne Luxford, Chief Executive Officer, Palliative Care Australia, Committee Hansard, 24 April 2012, p. 23.

[20]      See for example SA Government, Submission 27, p. 4; National Disability Service (NDS), Submission 49, p. 4; Mercy Health, Submission 58, p. 4; PCA, Submission 98, p. 13.

[21]      Ms Sarah Brown, Western Desert Aboriginal Corporation and Purple House,   Committee Hansard, 25 July 2012, p. 10.

[22]      Australian General Practice Network, Submission 107, p. 9. 

[23]      Aged and Community Services Australia, Submission 122, p. 8.

[24]      National Disability Services, Submission 49, p. 5. 

[25]      Palliative Care Australia, Submission 98, p. 13. 

[26]      Australian and New Zealand Society of Palliative Medicine, Submission 33, pp. 8–9. 

[27]      Australian and New Zealand Society of Palliative Medicine, Submission 33, pp. 8–9. 

[28]      Mercy Health, Submission 58, p. 4. 

[29]      Ms Cherie Waight, Victorian Aboriginal Care Project Coordinator, Victorian Aboriginal Community Controlled Health Organisation, Committee Hansard, 4 July 2012, p. 46.

[30]      See for example Dr Yvonne Luxford, Chief Executive Officer, Palliative Care Australia, Committee Hansard, 24 April 2012, pp. 22 and 23; Mercy Health, Submission 58, pp. 7–8; Cancer Council NSW and LifeCircle, Submission 83, p. 13; Department of Health and Ageing, Submission 96, p. 4. 

[31]      Cancer Council NSW and LifeCircle, Submission 83, p. 13. 

[32]      Little Company of Mary Health Care, Submission 81, p. 14. 

[33]      Department of Health and Ageing, Submission 96, p. 3.

[34]      Department of Health and Ageing, Submission 96, p. 3.

[35]      Department of Health and Ageing, Submission 96, p. 8.

[36]      Department of Health and Ageing, Submission 96, pp. 8–9.

[37]      Associate Professor Dominic Wilkinson, Committee Hansard, 13 August 2012, p. 2.

[38]      Associate Professor Dominic Wilkinson, Submission 53, p. 2. 

[39]      Associate Professor Dominic Wilkinson, Committee Hansard, 13 August 2012, pp. 2–3.

[40]      Paediatric Palliative Care Australian and New Zealand Reference Group, Submission 63, p. 1. 

[41]      Palliative Care Australia, Submission 98, p. 10. 

[42]      Paediatric Palliative Care Australian and New Zealand Reference Group, Submission 63, p. 1. 

[43]      Mr Richard Burnet, Committee Hansard, 4 July 2012, pp. 35–36. 

[44]      Mrs Fiona Engwirda, Submission 124, pp. 7–8 and 9.

[45]      Mr Richard Burnet, Committee Hansard, 4 July 2012, p. 36.

[46]      Mrs Fiona Engwirda, Submission 124, pp. 9-10.

[47]      Bear Cottage, What is Bear Cottage?, available: http://www.bearcottage.chw.edu.au/about/what_is.html (accessed 29 August 2012). 

[48]      Very Special Kids, About us, available: http://www.vsk.org.au/about-us (accessed 29 August 2012). 

[49]      Palliative Care Victoria, Submission 106, Appendix 5, pp. 20–21. 

[50]      The Centre for Cerebral Palsy, Submission 24, pp. 4–5.

[51]      Dr Jenny Hynson, Australia and New Zealand Paediatric Palliative Care Reference Group, Committee Hansard, 4 July 2012, p. 29.

[52]      Australian Nursing Federation, Submission 85, p. 8. 

[53]      Australian Nursing Federation, Submission 85, p. 8. 

[54]      Palliative Care Australia, Submission 98, pp. 15–16.

[55]      COSA and CVA, Submission 56, p. 3. 

[56]      Palliative Care Victoria, Submission 108, p. 11. 

[57]      Palliative Care Victoria, Submission 108, p. 11. 

[58]      Department of Health and Ageing, Answer to a question on notice, 24 April 2012 (received 25 July 2012).

[59]      Department of Health and Ageing, Answer to a question on notice, 24 April 2012 (received 25 July 2012).

[60]      See, eg, The Friends of Northern Hospice and Palliative Care Foundation, Submission 82.

[61]      Palliative Care Australia, Submission 98, p. 61.

[62]      Dr Yvonne Luxford, Chief Executive Officer, Palliative Care Australia, Committee Hansard,  24 April 2012, pp. 25–26.

[63]      Palliative Care Victoria, Submission 108, p. 10.

[64]      KinCare, Submission 25, p. 5; Australian Association of Social Workers NSW Palliative Care Social Work Practice Group, Submission 70, p. 1.

[65]      Palliative Care Australia, Submission 98, p. 64.

[66]      Ms Carolyn Smith, First Assistant Secretary, Ageing and Aged Care Division, Department of Health and Ageing, Committee Hansard, 24 April 2012, p. 16.

[67]      Centre for Cerebral Palsy, Submission 24, p. 5.

[68]      Australian and New Zealand School of Palliative Medicine, Submission 33, p. 15.

[69]      Palliative Care Nurses Australia, Submission 45, p. 9.

[70]      Department of Health and Ageing, Submission 96, p. 4.

[71]      GLBTI Retirement Association Incorporated, Submission 67, pp. 1–2.

[72]      Dr Jo Harrison, Submission 77, p. 2.

[73]      GRAI, Submission 67, p. 3.

[74]      GRAI, Submission 67, p. 3.

[75]      Lesbian and Gay Solidarity, Submission 48, p. 1.

[76]      GRAI, Submission 67, pp. 3–4.

[77]      Department of Health and Ageing, Submission 96, p. 9.

[78]      Dr Jo Harrison, Submission 77, p. 5.

[79]      Lesbian and Gay Solidarity, Submission 48,  GRAI, Submission 67, Dr Jo Harrison, Submission 77.

[80]      Dr Jo Harrison, Submission 77, p. 5.

[81]      Carers NSW, Submission 61, p. 9.

Chapter 12 - Other matters

[1]        Mr Peter Cleasby, President, Palliative Care New South Wales, Committee Hansard, 2 July 2012, pp. 55–56.

[2]        Dr Yvonne Luxford, Chief Executive Officer, Palliative Care Australia, Committee Hansard, 24 April 2012, p. 20.

[3]        Alzheimer's Australia, Submission 44, p. 19.

[4]        Dr Alan Rouse, Tasmanian Health Organisation, Committee Hansard, 5 July 2012, p. 1.

[5]        Mrs Julianne Whyte, Chief Executive Officer, Amaranth Foundation, Committee Hansard, 10 July 2012, p. 29.

[6]        Associate Professor Deborah Parker, Director, University of Queensland/Blue Care Research and Practice Development Centre, Blue Care, Committee Hansard, 2 July 2012, p. 2.

[7]        Associate Professor Deborah Parker, Blue Care, Committee Hansard, 2 July 2012, p. 7.

[8]        Professor Deborah Parker, Blue Care, Committee Hansard, 2 July 2012, p. 8.

[9]        Pharmacy Guild of Australia, Australia’s unique medication scheduling system http://www.guild.org.au/iwov-resources/documents/The_Guild/PDFs/News%20and%20Events/Publications/Fact%20Sheets/scheduling_system.pdf (accessed 4 October 2012).

[10]      Aged Care Association of Australia, Submission 93, p. 5.

[11]      South Australia Advanced Practice Palliative Care Pharmacists, Submission 13, pp. 2–3.

[12]      South Australia Advanced Practice Palliative Care Pharmacists, Submission 13, pp. 2–3.

[13]      South Australia Advanced Practice Palliative Care Pharmacists, Submission 13, pp. 2–3.

[14]      Aged and Community Services WA, Submission 66, p. 5.

[15]      Mr Denis Leahy, Committee Member, New South Wales Branch, Pharmacy Guild of Australia, Committee Hansard, 10 July 2012, pp. 1–2.

[16]      Mr Denis Leahy, Pharmacy Guild of Australia, Committee Hansard, 10 July 2012, pp. 1–2.

[17]      Mr Denis Leahy, Pharmacy Guild of Australia, Committee Hansard, 10 July 2012, pp. 7–8.

[18]      Mr Denis Leahy, Pharmacy Guild of Australia, Committee Hansard, 10 July 2012, pp. 7–8.

[19]      Mr Harvey Cuthill, National Councillor, Pharmacy Guild of Australia, Committee Hansard, 10 July 2012, pp. 7–8.

[20]      Mr Denis Leahy, Pharmacy Guild of Australia, Committee Hansard, 10 July 2012, pp. 1–2.

[21]      Associate Professor Frances Boyle AM, Former Executive, Medical Oncology Group of Australia, Committee Hansard, 2 July 2012, pp.41–42

[22]      Associate Professor Frances Boyle AM, Medical Oncology Group of Australia, Committee Hansard, 2 July 2012, pp.41–42.

[23]      Ms Jeanette Moody, Chief Executive Officer, Eastern Palliative Care Association Inc., Committee Hansard, 4 July 2012, p. 4.

[24]      Professor Jane Phillips, Professor of Palliative Nursing, University of Notre Dame and St Vincent's Sacred Heart, Committee Hansard, 2 July 2012, pp. 60–61.

[25]      Palliative Care Australia, Submission 98, p. 9.

[26]      Palliative Care Australia, Submission 98, p. 9.

[27]      Department of Health and Ageing, answers to questions taken on notice, question 4, received 23 August 2012.

[28]      Mr Harvey Cuthill, Pharmacy Guild of Australia, Committee Hansard, 10 July 2012, p. 8. 

[29]      Mr Nathan Smyth, First Assistant Secretary, Population Health Division, Department of Health and Ageing, Committee Hansard, 10 July 2012, pp. 42–43.

[30]      Department of Health and Ageing, answer to questions on notice, question 5, received 23 August 2012

[31]      Palliative Care Australia, Submission 98, pp. 86–87.

[32]      Palliative Care Australia, Submission 98, pp. 86–87.

[33]      Palliative Care Australia, Submission 98, p. 42.

[34]      Cabrini Health is a large Catholic private sector health service providing acute, sub-acute, and aged care services both within the hospital sector and the community, to the people of Melbourne. Within its services portfolio, Cabrini is proud to provide a significant specialist palliative care service through a 22 bed specialist inpatient unit at Cabrini Prahran, a Community Home Care Program to some 160 patients and families, and a Consultative service to improve symptom management and end of life care in our acute hospitals at Malvern and Brighton. Source: Cabrini Health, Submission 115, p. 1.

[35]      Cabrini Health, Submission 115, p. 1.

[36]      Cabrini Palliative Care Service, Submission 115, pp. 1–2.

[37]      Cabrini Health, Submission 115, p. 1.

[38]      Palliative Care Australia, Submission 98, pp. 86–87.

Chapter 13 - Advance Care Planning

[1]        Professor David Currow, Professor of Palliative and Supportive Services, Flinders University, Committee Hansard, 2 July 2012, p. 67.

[2]        Palliative Care Australia, Submission 98, p. 7.

[3]        Ms Rachel Bovenizer, Board Member, Palliative Care Victoria; and Chair, Southern Metropolitan Region Palliative Care Consortium; and Chief Executive Officer, Peninsula Home Hospice, Committee Hansard, 4 July 2012, p. 43.

[4]        Professor David Currow, Committee Hansard, 2 July 2012, p. 67.

[5]        Ms Kym McCartney, Committee Hansard, 4 July 2012, pp. 44–45.

[6]        Mrs Odette Waanders, Chief Executive Officer, Palliative Care Victoria, Committee Hansard, 4 July 2012, p. 43.

[7]        Palliative Care Australia, Submission 98, p. 118.

[8]        Palliative Care Australia, Submission 98, p. 21.

[9]        Ms Brynnie Goodwill, Chief Executive Officer, LifeCircle Australia Ltd, Committee Hansard, 24 April 2012, pp. 50–51.

[10]      Ms Brynnie Goodwill, LifeCircle Australia Ltd, Committee Hansard, 24 April 2012, p. 57.

[11]      Victorian Healthcare Association, Submission 57, p. 7.

[12]      Ms Brynnie Goodwill, LifeCircle Australia Ltd, Committee Hansard, 24 April 2012, p. 51.

[13]      Mrs Odette Waanders, Palliative Care Victoria, Committee Hansard, 4 July 2012, p. 42.

[14]      Dr Ron Sinclair, Consumer, Alzheimer's Australia, Committee Hansard, 24 April 2012, p. 1.

[15]      Professor Frances Boyle AM, Medical Oncology Group of Australia, Committee Hansard, 2 July 2012, p. 43.

[16]      Palliative Care Australia, Submission 98, p. 118.

[17]      Palliative Care Australia, Submission 98, p. 21.

[18]      See Australian government, DonateLife, http://www.donatelife.gov.au/home (accessed 31 August 2012)

[19]      For some other definitions see Australian Medical Association, Submission 65, p. 3; Respecting Patient Choices program, Submission 102, p. 1; Palliative Care Australia, Submission 98, p. 12; Australian General Practice Network, Submission 107, p. 19.

[20]      Australian General Practice Network, Submission 107, p. 20.

[21]      Department of Health and Ageing, Submission 96, p. 25.

[22]      Dr Leslie Bolitho AM, President, Royal Australasian College of Physicians, Committee Hansard, 2 July 2012, p. 10.

[23]      Australian General Practice Network, Submission 107, p. 19.

[24]      Ms Bernadette Tobin, Submission 103, p. 4; Australian Medical Association, Submission 65, p. 3.

[25]      Ms Bernadette Tobin, Submission 103, p. 4.

[26]      Ms Bernadette Tobin, Submission 103, p. 4.

[27]      Respecting Patient Choices, Submission 102, p. 3.

[28]      Ms Bernadette Tobin, Submission 103, p. 4.

[29]      Palliative Care Australia, Submission 98, p. 117.

[30]      Respecting Patient Choices, Submission 102, p. 3.

[31]      Palliative Care Australia, Submission 98, p. 119.

[32]      Professor Frances Boyle AM, Medical Oncology Group of Australia, Committee Hansard, 2 July 2012, p. 43.

[33]      Palliative Care Australia, Submission 98, p. 117.

[34]      Australian Medical Association, Submission 65, p. 3.

[35]      Palliative Care Australia, Submission 98, p. 21.

[36]      Palliative Care Australia, Submission 98, p. 118.

[37]      Department of Health and Ageing, Submission 96, p. 25.

[38]      Palliative Care Australia, Submission 98, p. 119

[39]      Australian Health Ministers' Advisory Council, Advance Care Directives Framework, September 2011, p. 1.

[40]      Palliative Care Australia, Submission 98, p. 119.

[41]      Mr Glenn Rees, Chief Executive Officer, Alzheimer's Australia, Committee Hansard, 24 April 2012, p. 4.

[42]      Alzheimer's Australia, Committee Hansard, 24 April 2012, p. 6.

[43]      Professor David Currow, Committee Hansard, 2 July 2012, p. 69.

[44]      Ms Robyn Coulthard, Member, Australian Nursing Federation, Committee Hansard, 24 April 2012, pp. 40–41.

[45]      Ms Brynnie Goodwill, LifeCircle Australia Ltd, Committee Hansard, 24 April 2012, p. 51.

[46]      Ms Jo Root, COTA, Committee Hansard, 10 July 2012, pp. 21–22.

[47]      Ms Jo Root, COTA, Committee Hansard, 10 July 2012, pp. 21–22.

[48]      Ms Julianne Bryce, Senior Federal Professional Officer, Australian Nursing Federation, Committee Hansard, 24 April 2012, p. 40.

[49]      Ms Julianne Bryce, Australian Nursing Federation, Committee Hansard, 24 April 2012, pp. 40–41

[50]      Department of Health and Ageing, Submission 96, p. 25. See also A National Framework for Advance Care Directives, available from: http://www.ahmac.gov.au/cms_documents/AdvanceCareDirectives2011.pdf (accessed 28 August 2012).

[51]      Australian Health Ministers' Advisory Council, Advance Care Directives Framework, September 2011, p. 1.

[52]      Australian Medical Association, Submission 65, p. 3.

[53]      Dr Yvonne Luxford, Chief Executive Officer, Palliative Care Australia, Committee Hansard, 24 April 2012, p. 22.

[54]      Mr David Butt, Deputy Secretary, Department of Health and Ageing, Committee Hansard, 24 April 2012, p. 10.

[55]      Ms Alice Creelman, First Assistant Secretary, Department of Health and Ageing, Committee Hansard, 24 April 2012, p. 10.

[56]      Ms Alice Creelman, Department of Health and Ageing, Committee Hansard, 24 April 2012, p. 10.

[57]      Associate Professor William Silvester, Director, Respecting Patient Choices, Austin Health, Committee Hansard, 13 August, 2012, p. 6.

[58]      Associate Professor William Silvester, Respecting Patient Choices, Austin Health, Committee Hansard, 13 August, 2012, p. 12.

[59]      Dr Adele Stevens, President, Health Care Consumers Association ACT, Committee Hansard, 24 April 2012, p. 46.

[60]      Professor David Currow, Committee Hansard, 2 July 2012, pp. 68–69.

[61]      KM Detering, AD Hancock, MC Reade, W Silvester, 'The impact of advance care planning on end of life care in elderly patients: randomised controlled trial', BMJ, vol. 340, 2010, p. 1345.

[62]      Mr Martin Laverty, Chief Executive Officer, Catholic Health Australia, Committee Hansard, 2 July 2012, pp. 36–37.

[63]      Respecting Patient Choices, Advance care planning for everyone, http://www.respectingpatientchoices.org.au/index.php?option=com_content&view=article&id=1:advance-care-planning-for-everyone&catid=5&Itemid=2 (accessed 3 October 2012)

[64]      See, eg, PH Ditto, JH Danks, WD Smucker, J Bookwala, KM Coppola, R Dresser, A Fagerlin, RM Gready, RM Houts, LK Lockhart and S Zyzanski, 'Advance directives as acts of communication: A randomized controlled trial', Arch Intern Med, vol.161, 2001, pp. 421–430; PM Abadir, TE Finucane and MK McNabney, 'When Doctors and Daughters Disgree: Twenty-Two Days and Two Blinks of an Eye', Journal of the American Geriatrics Society, vol. 59, 2011, pp. 2337–2340; RA Pruchno, EP Lemay, L Field and NG Levinsky, 'Spouse as health care proxy for dialysis patients: Whose preferences matter?', Gerontologist, vol. 45, pp. 812–819.

[65]      Amaranth Foundation, http://www.amaranth.org.au/ (accessed 3 October 2012).

[66]      Mrs Julianne Whyte, Chief Executive Officer, Amaranth, Committee Hansard, 10 July 2012, p. 28.

[67]      Mrs Julianne Whyte, Amaranth Foundation, Committee Hansard, 10 July 2012, p. 30.

[68]      Respecting Patient Choices®, ACP Documents, http://www.respectingpatientchoices.org.au/index.php?option=com_content&view=article&id=46&Itemid=45 (accessed 4 September 2012)

[69]      Palliative Care Queensland, Submission 130, pp. 8–9; Respecting Patient Choices® Victorian and Interstate Programs http://www.respectingpatientchoices.org.au/index.php?option=com_content&view=article&id=49&Itemid=52 (accessed 3 October 2012)

[70]      Associate Professor William Silvester, Respecting Patient Choices, Austin Health, Committee Hansard, 13 August, 2012, p. 7.

[71]      Associate Professor William Silvester, Respecting Patient Choices, Austin Health, Committee Hansard, 13 August, 2012, p. 9.

[72]      Information available from: http://www.nehta.gov.au/ehealth-implementation/what-is-a-pcher (accessed 30 August 2012)

[73]      Community Affairs Legislation Committee, Personally Controlled Electronic Health  Records Bill 2011 [provisions] and the Personally Controlled Electronic Health Records Bill 2011 (Consequential Amendments) Bill 2011 [provisions], March 2012.

[74]      Professor Frances Boyle AM, Medical Oncology Group of Australia, Committee Hansard, 2 July 2012, p. 43.

[75]      Mr Trevor Carr, Chief Executive, Victorian Healthcare Association, Committee Hansard, 4 July 2012, p. 12.

[76]      Dr Alan Rouse, Tasmanian Health Organisation – North West, Committee Hansard, 5 July 2012, p. 4.

[77]      Department of Health and Ageing, Committee Hansard, 10 July 2012, pp. 42–43.

[78]      Department of Health and Ageing, Committee Hansard, 10 July 2012, pp. 42–43.