A. Submissions

1
Mr Robert Heron
2
Ms Rachel Rogers
3
Recordati Rare Diseases Australia
4
Fabry Australia
5
Ms Julia Burlison
6
Mrs Donna Greenhalgh
7
Specialised Therapeutics Australia
8
Cystic Fibrosis Australia
9
Mind Medicine Australia
10
Mirum Pharmaceuticals
11
Myeloproliferative Neoplasms Alliance Australia
12
Myeloma and Related Diseases Registry
12.1 Supplementary to submission 12
13
Mr Michael Smith
14
Confidential
15
Department of Health
15.1 Supplementary to submission 15
15.2 Supplementary to submission 15
15.3 Supplementary to submission 15
15.4 Supplementary to submission 15
15.5 Supplementary to submission 15
15.6 Supplementary to submission 15
15.7 Supplementary to submission 15
16
Australasian Sleep Association
17
Dr Falk Pharma Australia Pty Ltd
18
QIMR Berghofer
19
PFIC Network
20
Confidential
21
Myasthenia Alliance Australia
22
Name Withheld
23
Humane Research Australia
24
Migraine Australia Ltd
25
Name Withheld
26
Australian Pompe Association
27
Family Planning NSW
28
Stryker South Pacific
28.1 Supplementary to submission 28
29
Alpha-1 Organisation Australia Inc
Attachment 1
30
Alexion Pharmaceuticals Australasia
30.1 Supplementary to submission 30
31
Amicus Therapeutics
32
Luminesce Alliance
33
Save Our Sons Duchenne Foundation
Attachment 1
34
Merck Healthcare Pty Ltd
35
Sleep Disorders Australia & Hypersomnolence Australia
36
Sanfilippo Children's Foundation
37
Spinal Muscular Atrophy Association of Australia Inc.
38
Ms Fiona Mobbs
39
Eczema Support Australia
40
Miss Jessica Pace
41
ARCS Australia
42
AstraZeneca Australia
43
Australia and New Zealand Legal and Regulatory Affairs Committee of the International Society of Cell and Gene Therapy
44
Queensland Genomics Community Advisory Group
45
Mrs Pamela Bird
46
The GUARD Collaborative
47
Myriad Genetics Pty Ltd
48
Name Withheld
49
Dr Bruce Baer Arnold and Dr Wendy Bonython
50
Medical Oncology Group of Australia and Private Cancer Physicians of Australia
51
Rare Disease Industry Working Group
52
JDRF Australia
53
Australian Antimicrobial Resistance Network
54
Mrs Melissa Jose
55
Narcolepsy Australia
56
Painaustralia
57
DMTC Ltd
58
Name Withheld
59
Albireo Pharma, Inc.
60
Ms Patricia Pontynen
61
Victorian Comprehensive Cancer Centre
62
Macquarie University Centre for the Health Economy
63
Merck Sharp & Dohme Australia
64
MND Australia
65
Ipsen Pty Ltd
66
Takeda Pharmaceuticals Australia Pty Ltd
67
Australian Patient Advocacy Alliance
68
Australian Healthcare and Hospitals Association
69
Mrs Janna Linke
70
Noxopharm Limited
71
Patient Voice Initiative
71.1 Supplementary to submission 71
72
Dr Haitham Tuffaha
73
ausEE Inc.
74
UCB Australia Pty Ltd
74.1 Supplementary to submission 74
75
Medicinal Cannabis Industry Australia
76
Australian Cardiovascular Alliance
77
Duchenne Australia
78
Research Australia
79
Myositis Association - Australia Inc.
80
ViiV Healthcare
81
XLH Australia Inc.
82
Amgen Australia
82.1 Supplementary to submission 82
82.2 Supplementary to submission 82
82.3 Supplementary to submission 82
82.4 Supplementary to submission 82
82.5 Supplementary to submission 82
82.6 Supplementary to submission 82
Attachment 1
83
Edwards Lifesciences Pty Limited
84
Children's Cancer Institute
85
MS Australia
86
Rare Voices Australia
87
Kyowa Kirin Australia
88
Association of Australian Medical Research Institutes
88.1 Supplementary to submission 88
89
Ms Monica Kurth
90
Mrs Vanessa Brown
92
Roche Australia
93
New South Wales Government
94
Australian Prescriber
95
Australasian Association of Nuclear Medicine Specialists and the Australian and New Zealand Society of Nuclear Medicine
96
ClinTrial Refer
97
Melbourne Academic Centre for Health
98
Australian Amyloidosis Network
99
Sanofi
99.1 Supplementary to submission 99
100
Name Withheld
101
Gilead Sciences
102
Gene Therapy Advisory Steering Group, Sydney Children's Hospital Network
103
Leukaemia Foundation
Attachment 1
Attachment 2
104
Blood Cancer Taskforce
Attachment 1
105
The George Institute for Global Health
Attachment 1
106
Results International Australia
107
Australian Nuclear Science and Technology Organisation
108
The Pharmacy Guild of Australia
109
Metabolic Dietary Disorders Association
110
Prader-Willi Research Foundation Australia
110.1 Supplementary to submission 110
111
3DMEDiTech
112
Australasian Leukaemia and Lymphoma Group and Haematology Society of Australia and New Zealand
113
Mr Rod Longmire
114
AusBiotech
115
The Australian and New Zealand Headache Society
116
Melanoma & Skin Cancer Advocacy Network
117
Migraine & Headache Australia
118
Bristol Myers Squibb Australia
118.1 Supplementary to submission 118
Attachment 1
119
Haemophilia Foundation Australia
120
Australian and New Zealand Children's Haematology/Oncology Group
121
Mrs Deb Bailey
122
Medtronic Australasia
123
Melbourne Children's Campus
124
Dr Fiona West
125
Mito Foundation
126
Dr Anneke Blackburn
127
SCN2A Australia
128
Allergy & Anaphylaxis Australia
129
Western Australia Department of Health
130
Biotronik Australia Pty Ltd
130.1 Supplementary to submission 130
131
Name Withheld
132
Ms Michelle and Mr Eliot Jones
133
The University of Melbourne
134
Johnson & Johnson
135
Ovarian Cancer Australia
136
White Coats Foundation
137
Pfizer Australia
138
Novartis Australia and New Zealand
139
ITP Australia
140
Eli Lilly Australia
141
Medicines Australia
141.1 Supplementary to submission 141
142
Immune Deficiencies Foundation Australia
143
Lymphoma Australia
144
Carers and Patients of Braf V600E Colorectal Cancer
145
CSL Behring
145.1 Supplementary to submission 145
146
Varian Medical Systems Australasia
147
Australasian Society of Clinical Immunology and Allergy
Attachment 1
148
Medical Technology Association of Australia
149
Australian Clinical Trials Alliance Ltd
150
Dr Susanne O'Malley
151
Novo Nordisk Oceania
152
BioMarin Pharmaceutical Australia Pty Ltd
153
Foundation for Angelman Syndrome Therapeutics Australia
154
Juvenile Arthritis Foundation Australia
Attachment 1
Attachment 2
155
NeuroEndocrine Cancer Australia
156
National Allergy Strategy
157
Maridulu Budyari Gumal
158
Monash Institute for Medical Engineering
Attachment 1
159
Fragile X Association of Australia
160
Better Access Australia
161
Psychedelic Research In Science and Medicine Inc.
162
Name Withheld
163
Australian Rheumatology Association
164
BXTAccelyon Limited
165
WMozzies
166
Rare Cancers Australia
Attachment 1
Attachment 2
167
Rare Ovarian Cancer Inc.
168
Ms Dianne Spillane
169
The CF Pipeline Patient Interest Group
170
Name Withheld
171
Confidential
172
Confidential
173
Confidential
174
Confidential
175
Bayer Australia and New Zealand
176
Confidential
177
Confidential
178
Pathology Technology Australia
178.1 Supplementary to submission 178
178.2 Supplementary to submission 178
179
Centre for Law and Genetics, University of Tasmania and Sydney Health Law and Sydney Health Ethics, Sydney University
180
AbbVie Pty Ltd
181
Shawview Consulting
182
Red Cross Lifeblood and the South Australian Health and Medical Research Institute
183
InteliCare
Attachment 1
184
Omico: Australian Genomic Cancer Medicine Centre
Attachment 1
185
Sydney Children’s Hospital Network and the Children’s Medical Research Institute
186
Confidential
187
TALi Health
187.1 Supplementary to submission 187
188
Medistar
189
MedReleaf Australia
189.1 Supplementary to submission 189
190
National Aboriginal Community Controlled Health Organisation
190.1 Supplementary to submission 190
191
Abbott Diabetes Care
192
T1D Hub
193
Confidential
194
Dr Diane Sheehan
195
AccessCR Pty Ltd
196
Australian Federation of AIDS Organisations
197
Private Healthcare Australia
198
Sleepfit Solutions Pty Ltd
199
Mrs Lyndal Lemmey
200
FSHD Global Research Foundation
201
HealthMatch
202
Leo Pharma
203
Pharmaceutical Society of Australia
204
The Royal Australian and New Zealand College of Radiologists
205
Consumers Health Forum of Australia
206
BioScience Managers
207Australian Commission on Safety and Quality in Health Care

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