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APPENDIX 1 - ORGANISATIONS AND INDIVIDUALS WHO PRESENTED WRITTEN PUBLIC SUBMISSIONS AND ADDITIONAL INFORMATION TO THE INQUIRY

1
Dr Frank Peters - ACT

Parts to submission
Inquiry into CJD Settlement Reference 1(c) dated 5.7.97 (2)
Inquiry into CJD Settlement Reference 1(b) dated 8.7.97
Inquiry into CJD Settlement Reference 2 - Code of Good Manufacturing dated 8.7.97
Inquiry into CJD Settlement - Reference 2 Allars Report Appendix 2 dated 12.7.97
Inquiry into CJD Settlement - Reference 2 Hepatitis Contamination dated 12.7.97
Inquiry into CJD Settlement dated 1.8.97

Documents tabled at public hearing 13.8.97
Agreement and Release
CSL Internal Communication - Test result batch 128

Supplementary Information
Inquiry into CJD Settlement dated 15.8.97
Inquiry into CJD Settlement - Reference 2 dated 16.8.97
Inquiry into CJD Settlement - Reference 2 dated 17.8.97
Inquiry into CJD Settlement - Professor Allars Submission dated 17.8.97
CJD Settlement Offer - Hansard Pages CA 118 - CA 155 dated 21.8.97
Copy of the writ received 22.8.97
Inquiry into CJD Settlement - APQ dated 8.9.97
Inquiry into CJD Settlement - `FSH' batch 24 dated 9.9.97
Inquiry into CJD Settlement - Reference 2 dated 11.9.97
Inquiry into CJD Settlement - Hepatitis Batch 128 dated 11.9.97
Inquiry into CJD Settlement - `Sydney Morning Herald' Article dated 20.9.97

2
Mrs Gina Stachlewski - VIC

Parts to submission
Background material dated 1.12.9
Inquiry into CJD Settlement dated 7.7.97
Inquiry into CJD Settlement dated 19.7.97
Inquiry into CJD Settlement `fair and adequate' dated 21.7.97
Inquiry into CJD Settlement `legal aid' dated 26.7.97

Documents tabled at public hearing 12.8.97
Creutzfeldt-Jakob Disease
Disclosure to low-risk volunteers and patients
Creutzfeld-Jakob Disease (Pamphlet May 1986)
Treatment with Human Pituitary Hormones and Risk of Creutzfeld-Jakob Disease (Pamphlet June 1995)
Inquiry into CJD Settlement dated 19.7.97

Supplementary Information
Issues Raised by Evidence of NPHAC dated 19.8.97
Inquiry into CJD Settlement - DHFS evidence dated 31.8.97
Inquiry into CJD Settlement - Letter dated 16.9.97

3
Mrs Lesley Thomas - NSW
4
Ms Joanne Coldwell - NSW

Parts to submission
Submission dated 9.7.97
Amendment to submission dated 10.7.97
Terms of reference for the inquiry to address dated 14.7.97
Additional information dated 17.7.97

Supplementary Information
Points of Discrimination Against Unofficial Recipients dated 14.8.97

5
Dr Wes Whitten - ACT

Document tabled at public hearing 13.8.97
Photograph of glands sorted for visual screening

Supplementary Information
Inquiry into CJD Settlement dated 19.8.97
Comments on CSL response to evidence dated 29.8.97

6
Ms Helen Cunningham - VIC
7
Mrs M Gomplewicz - VIC
8
Ms Lorraine J Bray - QLD
9
National Health and Medical Research Council - Canberra ACT

Supplementary Information
Response to questions on notice dated 22.8.97
Response to questions on notice dated 27.8.97

10
Ms Patricia Mather - NSW
11
Rennick Briggs Lawyers - VIC

Document tabled at public hearing 12.8.97
Creutzfeldt-Jakob Disease-APQ dated 18.4.97

Supplementary Information
Inquiry into CJD Settlement dated 11.8.97
Inquiry into CJD Settlement Etc dated 13.8.97
Inquiry into CJD Settlement dated 22.8.97

12
Mr Kim Price - NSW
13
Mr Rod Bell - NSW
14
Mr Dale Sloan - QLD
15
Ms Lorraine Broom - NSW
16
Mrs Elizabeth Maslin - SA
17
Ms Patricia Hart - TAS
18
Mrs Geraldine Brodrick - QLD
19
Ms Sylvia Cahill - VIC
20
Ms Judy Robinson - QLD
21
Dr Ann Matthews - SA
22
Mr John S Chappel - SA
23
Ms Sue Shelley - TAS
24
CJD Support Group Network Inc - VIC

Supplementary Information
received 21.8.97
NSW/ACT CJD Support Group dated 29.9.97

25
Mrs Stephanie Lainey - NSW
26
Ms Susan Mary Heggaton - NSW
27
Mr David Ralston - NSW
28
Ms Anna Taccucci - NSW
29
Ms Beverley Joy Baxter - NSW
30
Ms Lorna Wood - QLD
31
Professor Colin Masters - VIC
32
Mrs A Kettles - VIC
33
Mrs Carol Wilson - TAS
34
Ms Helen Bird - TAS
35
Mr Stephen Bradford - NSW
36
Mrs Rosalind D'Aquino - NSW
37
Mrs D Born - QLD
38
Ms Linda Davidson - QLD
39
Ms Janet Hearne - QLD
40
Ms Jillian Crabtree - SA
41
Mrs Jane E Taheny - QLD
42
National Pituitary Hormones Advisory Council (NPHAC) - ACT

Document tabled at public hearing 13.8.97
Letter from Legal Aid and Family Services concerning the availability of legal aid for proceedings dated 29.8.97

43
Ms Jillian Anne Sloan - NSW
44
Ms Carolyn Vernon - VIC
45
Ms J C Schafer - NSW
46
Ms Susan Harris - NSW
47
Ms Janice A Parker - QLD
48
Mrs J Criddle - WA
49
Ms Carol Ann Brown - QLD
50
Mrs Elaine Wareing - SA
51
Ms Meralyn Barclay - TAS
52
Ms Suzanne Solvyns - NSW
53
Mrs A L Brittain - QLD
54
Ms Carol Slack - QLD
55
Mrs Jacqueline Muir - SA
56
Ms Pamela Joy Baker - VIC

Document tabled at hearing 12.8.97
Additional information concerning treatment

57
Confidentiality requested
58
Ms Marie Sinnott - SA
59
The South Australian CJD Support Group - SA
60
Mr C J Doolin - QLD
61
Mr Toby Austin - QLD
62
Confidentiality requested
63
Mr Agnas Hopkins - WA
64
Mr Mark Lamerton - QLD
65
Ms Maureen Benfer - QLD
66
Ms Lindy Brand-Adams - QLD
67
Confidentiality requested
68
Confidentiality requested
69
Mr Geoffrey Clarke Hinchcliff - NSW
70
Ms Ninetta Zuccarello - QLD
71
Ms Samantha Ogilvie - VIC

Supplementary Information
Letter dated 9.9.97

72
Mr Thomas John Thompson - QLD
73
Dr W K Whitten and Dr P McCullagh - ACT
74
Attorney-General's Department, including the Australian Government Solicitor - ACT

Supplementary Information

Inquiry into CJD Settlement dated 21.8 97

75
Ms Sue Burrow - TAS
76
Ms Roslyn Solberg - NSW
77
Mrs L B Moses - TAS
78
Mrs Julianne Giddey - NSW
79
Confidentiality requested
80
Ms Jennifer Stuart - VIC
81
Ms Elizabeth T Jacura - SA
82
Mr & Mrs D Fry - NSW
83
Dr Pamela Rachootin - SA
84
Ms Helen Broadhurst - QLD
85
Commonwealth Department of Health and Family Services - ACT

Documents tabled at public hearing 25.8.97
Response to questions and evidence by departmental and CSL officers
Copy of transparencies shown at hearing

Supplementary Information
Inquiry into CJD Settlement dated 22.8.97
Inquiry into CJD Settlement dated 29.8.97

86
Dr David Howes - ACT

Supplementary Information
Statement dated 13.8.97
Response to former CSL Commission evidence received 22.9.97

87
Confidentiality requested
88
Mrs Jennifer Zander - SA
89
Mrs Roslyn J Readman - NSW
90
Mr Darran Parry - QLD
91
Mrs Sandra Greenfield - NSW
92
Professor Margaret Allars - NSW
93
Macedone Christie Willis Lawyers - NSW

Supplementary Information
Inquiry into CJD Settlement dated 15.8.97
CJD Senate Inquiry - Possible Destruction of Allars Documents dated 8.9.97
Inquiry into CJD Settlement - Letter from AGS and Information about Batch 003 from the Department and CSL dated 24.9.97


Correspondence authorised for publication by the Committee:

CSL, dated 18.7.97
Mr Peter Bansemer, dated 19.9.97

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